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LRG Assisted in CAP Guidelines Modifications with a Diagnostic Algorithm

The LRG, in collaboration with the Pediatric & SDH-Deficient GIST Consortium and key opinion leaders among the GIST pathology community (with Dr. Brian Rubin taking the lead), played a significant role in changing CAP Guidelines. CAP Guidelines are protocols for pathologists to instruct them on the process of diagnosing a disease based on tumor tissue samples.

By |2019-08-29T10:18:35-04:00August 29th, 2019|Advocacy, Mutational Testing, News|

One Voice Against Cancer (OVAC) Advocates for Cancer Patients

OVAC is a coalition of over 50 nonprofit cancer organizations that advocate on behalf of cancer patients to deliver a unified message to Congress and to the White House on the need for increased [...]

By |2019-07-02T14:28:52-04:00June 20th, 2019|Advocacy, News, Newsletter|

State Leader Spotlight – John Abrams, Colorado, USA

John Abrams, our new LRG State Leader for Colorado, has a vision of helping others cope with GIST. John’s story spans a journey with three types of cancer. First, misdiagnosed in 1997 with leiomyosarcoma, [...]

By |2019-07-03T09:26:03-04:00June 20th, 2019|Advocacy, Member Stories, Patient Support|

National Integrated Cancer Control Act Approved in the Philippines

WE DID IT! National Integrated Cancer Control Act is Approved! Contributed by Rod Padua / President, Touched By Max PHILIPPINES In a country of 104 million, there are approximately 141,021 new cancer cases in [...]

By |2019-03-13T14:57:26-04:00March 13th, 2019|Advocacy, Global, News|

Global Representative Spotlight – Florence Thwagi, Kenya

My Journey with GIST My name is Florence Thwagi, and I am 53-years-old. I am an Executive Board Member of Henzo Kenya, an advocacy group that creates awareness and support GIST patients in Kenya. [...]

By |2019-02-21T09:29:11-05:00February 21st, 2019|Advocacy, Member Stories, Newsletter, Patient Support|