You Can Support SDH-deficient GIST Research Today!
The rarity of SDH-deficient GIST cell lines has been a major obstacle in researching this disease. Access to SDH-deficient GIST tissue is vital for advancing research to understand and treat this cancer, as tumor tissue samples can be used for developing disease models like tumor cell lines.
If you are involved in an upcoming SDH-deficient GIST surgery, we encourage you to consider participating in this program by facilitating tissue donation. Please contact bowens@liferaftgroup.org for information on how to arrange a donation. Arrangements for this type of tissue donation must be made before surgery and has a specific process to collect.
About the SDH Biobank Collaboration
We launched a centralized SDH-Deficient GIST Biobank spearheaded by Dr. Jason Sicklick at UC San Diego and funded by the NIH/NCI. This biobank will be led by Dr. Andrew Blakely at the NIH, including all respective members of NIH, such as Dr. John Glod. The LRG will play a vital role in coordinating the identification of participants and collecting patient data for this groundbreaking project. This is the first multi-institutional, centralized biobank established for SDH-deficient GIST in the US. We will collect high-quality, well-preserved tumor samples obtained during surgery. The samples preserved in our biobank will be made available to researchers conducting active studies. We are reaching out to patients and surgeons to contribute fresh tumor samples from SDH-deficient GIST patients.
If you would like to participate or would like to learn more about this program, please email: u01biobank@liferaftgroup.org
