Danijel Romic, a 34-year old GIST patient from Crikvenica in Croatia, was faced with a challenge. Diagnosed with GIST in 2014, he did not have access to a potential life-saving treatment, Nexavar, which in Croatia is not registered for the treatment of GIST. He reached out on Facebook, including to the Life Raft Group page, seeking assistance. […]
Danijel Romic, Nexavar, SDH B Wildtype, Social Media
“Summer, Summer almost here. Let’s give summer a big fat cheer! Of this fact, I’m surely clear: summer is the best time of year.” ~Tim Rasinski Many people love the warm sun, beaches, and gardens in full bloom, but along with those long beautiful summer days comes the threat of sun damage. What does this […]
Gleevec, Side Effects, Skin protection, Stivarga, sun protection, sunscreen, sutent
The digestive system is a group of organs that work together to feed the entire body by converting food into energy and basic nutrients. Food is ingested through the mouth; passed through the esophagus into the stomach; and filtered through the small intestine, pancreas and liver. Based on its particular function, each organ contributes in […]
Gastrointestinal Tract, nutrition, Vitamin Supplements, Vitamins
Interviewing Dr. Monica “mOe” Anderson is like having a cup of tea with a friend with all the requisite perks: laughter, sharing of life philosophies and sound advice, and mutual respect. Dr. Anderson is a survivor. In the introduction to her latest book, Success is a Side Effect: Leadership, Relationships and Selective Amnesia, she describes […]
Dr. Monica Anderson, GIST, GIST Support, newly diagnosed, Side Effects