October 2nd GIST DO IT Walk NJ Postponed
The welfare of our members and staff is of utmost importance to us and due to ongoing pandemic, we have decided to take the precaution of postponing our GIST DO IT Walk which was scheduled for October 2nd.
New Treatment Updates for Advanced GIST
This video is about the new treatment updates for advanced GIST. It is presented by William D. Tap, MD.
Management of Metastatic GIST – What to Expect When a Tumor has Spread
This video contains information about the management of metastatic GIST presented by Dr. Aimee Crago.
Conversations with the LRG: Long-Term Survivors
On May 4th the LRG held a lively discussion with three long-term survivors, Erin McBean, John Abrams, and Dr. mOe Anderson. Diagnosed at different stages of life, with different mutations, these GISTers shared how they have thrived with GIST over ten years and counting.
LRG Represented on Panel About Diversity
The National Organization for Rare Disorders (NORD) held a webinar on February 19th, 2021 for NORD member organizations as well as leaders and staff of nonprofits organizations involved in rare diseases including pharma, patients, caregivers, and advocates.
A Seat at the Table
The Connective Tissue Oncology Society (CTOS) meeting was held Nov 18-21st and was chaired by three women in the field. This year’s meeting special because it was held virtually due to COVID-19. One of the new aims of the CTOS organization is to incorporate the patient perspective in more of its sessions.
Have More Fun at the Women in Sarcoma Gala
Get Ready to Have Fun at the Women in Sarcoma Virtual Gala. Here are ways to up your fun and participate on this night when we honor the Women in Sarcoma award recipients.
Words of Wisdom from Women in Sarcoma
We asked the amazing honorees of the first annual Women in Sarcoma Gala some personal questions to help us learn more about them, and their experiences. Have you RSVP'd for the Gala on Dec. 10 at 6PM ET? RSVP today for this free, virtual event, to be held in loving memory of GISTer Nikki Morales.
Recognizing Our Women in Sarcoma Gala Honorees 2020
The Women in Sarcoma Gala, the culmination of the Women in Sarcoma series for 2020, will recognize medical professionals who have made an exceptional difference in the lives of GIST patients and their families. In addition, we will also honor two amazing sarcoma patients who have met the challenge their disease presented and have gone above and beyond to make a difference in the rare disease community.
Honoring the Memory of Nikki Morales – the Women in Sarcoma Gala
Join us for the first virtual annual Women in Sarcoma Gala in loving memory of Nikki Morales. Nikki Morales was a patient advocate, philanthropist, public speaker, volunteer, and an inspiration for so many within the sarcoma community.