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Words of Wisdom from Women in Sarcoma

We asked the amazing honorees of the first annual Women in Sarcoma Gala some personal questions to help us learn more about them, and their experiences. Have you RSVP'd for the Gala on Dec. 10 at 6PM ET? RSVP today for this free, virtual event, to be held in loving memory of GISTer Nikki Morales.

By |2020-12-04T09:32:36-05:00November 17th, 2020|Events, News|

Recognizing Our Women in Sarcoma Gala Honorees 2020

The Women in Sarcoma Gala, the culmination of the Women in Sarcoma series for 2020, will recognize medical professionals who have made an exceptional difference in the lives of GIST patients and their families. In addition, we will also honor two amazing sarcoma patients who have met the challenge their disease presented and have gone above and beyond to make a difference in the rare disease community.

By |2020-12-11T14:11:28-05:00November 13th, 2020|Events, News|

Honoring the Memory of Nikki Morales – the Women in Sarcoma Gala

Join us for the first virtual annual Women in Sarcoma Gala in loving memory of Nikki Morales. Nikki Morales was a patient advocate, philanthropist, public speaker, volunteer, and an inspiration for so many within the sarcoma community.

By |2020-11-19T15:09:31-05:00November 11th, 2020|Events, News|

Save the Date – Women in Sarcoma Virtual Gala

Doctors, radiologists, nurses, social workers, pathologists, researchers and patients share their strength, hope, and experience with sarcoma patients and each other worldwide each day. The Life Raft Group is honoring a group of these women at the Women in Sarcoma with a Virtual Gala on December 10, at 6pm ET.

By |2020-11-19T14:34:53-05:00November 5th, 2020|Events, News|

LRG Hosts Virtual Meeting for Global GIST Advocates

On Friday, August 21, The Life Raft Group hosted a virtual meeting entitled “GIST Patient Advocacy during the 'New Normal' of the COVID 19 Pandemic.” Designed for representatives from global GIST advocacy organizations, its purpose was to provide a forum for the international community to discuss challenges they are facing, and to share experiences and best practices.

By |2020-09-18T13:39:11-04:00September 8th, 2020|Advocacy, Events, Global, News|

Virtual Life Fest 2020: SDH Panel Summary

Over fifty participants attended a virtual meeting of SDH Experts in honor of GIST Awareness Day, July 13th, during Virtual Life Fest 2020. Questions were presented to the panel which included One of the first questions asked was “what specifically are your most challenging research hurdles and how can we, as patients and patient advocates from around the world help move research forward?”

By |2020-09-09T14:20:33-04:00August 31st, 2020|Events, News, SDH-Deficient GIST|
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