The National Organization for Rare Disorders (NORD) held a webinar on February 19th, 2021 for NORD member organizations as well as leaders and staff of nonprofits organizations involved in rare diseases including pharma, patients, caregivers, and advocates.
The Connective Tissue Oncology Society (CTOS) meeting was held Nov 18-21st and was chaired by three women in the field. This year’s meeting special because it was held virtually due to COVID-19. One of the new aims of the CTOS organization is to incorporate the patient perspective in more of its sessions.
Get Ready to Have Fun at the Women in Sarcoma Virtual Gala. Here are ways to up your fun and participate on this night when we honor the Women in Sarcoma award recipients.
We asked the amazing honorees of the first annual Women in Sarcoma Gala some personal questions to help us learn more about them, and their experiences. Have you RSVP'd for the Gala on Dec. 10 at 6PM ET? RSVP today for this free, virtual event, to be held in loving memory of GISTer Nikki Morales.
The Women in Sarcoma Gala, the culmination of the Women in Sarcoma series for 2020, will recognize medical professionals who have made an exceptional difference in the lives of GIST patients and their families. In addition, we will also honor two amazing sarcoma patients who have met the challenge their disease presented and have gone above and beyond to make a difference in the rare disease community.
Join us for the first virtual annual Women in Sarcoma Gala in loving memory of Nikki Morales. Nikki Morales was a patient advocate, philanthropist, public speaker, volunteer, and an inspiration for so many within the sarcoma community.
Doctors, radiologists, nurses, social workers, pathologists, researchers and patients share their strength, hope, and experience with sarcoma patients and each other worldwide each day. The Life Raft Group is honoring a group of these women at the Women in Sarcoma with a Virtual Gala on December 10, at 6pm ET.
The Life Raft Group has developed the Women in Sarcoma program in recognition of the many women sarcoma specialists that engage with our organization and our patient and caregiver community.
This is the monthly update for the LRG Outreach & Engagement Department, detailing events for October and volunteer positions available.
On Friday, August 21, The Life Raft Group hosted a virtual meeting entitled “GIST Patient Advocacy during the 'New Normal' of the COVID 19 Pandemic.” Designed for representatives from global GIST advocacy organizations, its purpose was to provide a forum for the international community to discuss challenges they are facing, and to share experiences and best practices.