Danijel Romic, a 34-year old GIST patient from Crikvenica in Croatia, was faced with a challenge. Diagnosed with GIST in 2014, he did not have access to a potential life-saving treatment, Nexavar, which in Croatia is not registered for the treatment of GIST. He reached out on Facebook, including to the Life Raft Group page, seeking assistance. […]
Danijel Romic, Nexavar, SDH B Wildtype, Social Media
In honor of our H.E.R.O. campaign, we are profiling our GIST Superheroes By Belinda Gist, Guest Contributor Romans 12:12 “Rejoicing in hope; patient in tribulation; continuing instant in prayer…” Let me introduce you to Cindy Farr. Cindy’s super power is her faith. Having become a Christian in her teenage years, Cindy has always sought God’s guidance and […]
Cindy Farr, GIST Superhero, Member Story
My name is Suzy Hetherton Burke, I’m 66 years old and happily retired! I grew up in New Jersey, graduated from Rosemont College in PA and moved to NYC after graduation. Charlie and I met, dated and got married when we were living in the West Village and working in the city. We stayed in […]
GIST Caregiver, Member Story, Suzy Burke
I celebrate my ten-year “cancerversary” on January 31st. I can’t believe it’s been 10 years! I will celebrate by spending some intentional time with my family, including my beautiful 16 month-old daughter, Katelyn. My wish for all of you battling GIST is to really live each day, as none of us are promised tomorrow. Forgive […]
Cancerversary, GIST patient, Kimberly Glass