Member Stories

/Member Stories

The Werners – Finding the New Normal Living with Wildtype GIST

Left to right: Arianna, Tiffany, Cameron, Bryce and Chris Werner Bryce Werner was a regular middle-schooler living an average 12-year-old life in Pennsylvania when suddenly everything was thrown wildly left of normal [...]

By | 2018-07-06T12:25:25+00:00 June 29th, 2018|Member Stories, News, Newsletter|

It’s a Journey: Our Experience on Clinical Trials

By Jennifer Moore, LRG MemberI was waiting in line to pick up a new prescription for Gleevec when my husband ran in and told me to forget it. After two surgeries, a year on 400 [...]

By | 2018-07-30T10:26:09+00:00 December 28th, 2017|Clinical Trials, Member Stories, News, Newsletter|

Social Media Helps Rescue Croatian Patient

Danijel Romic with his 2 children Danijel Romic, a 34-year old GIST patient from Crikvenica in Croatia, was faced with a challenge. Diagnosed with GIST in 2014, he did not have access to a [...]

By | 2018-07-05T19:39:46+00:00 September 18th, 2017|Coping with GIST, Member Stories, News, Newsletter|

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Upcoming Events

  1. Sarcoma & GIST: Education Symposium

    September 29 @ 9:00 AM - 2:45 PM
  2. Michigan GDOL 2018

    Michigan GDOL 2018

    October 27 @ 8:00 AM - 3:00 PM
  3. NTFC

    Night to Fight Cancer

    November 7 @ 6:00 PM - 11:00 PM