Patient of the Month: Santy DiSabatino
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
The Werners – Finding the New Normal Living with Wildtype GIST
Left to right: Arianna, Tiffany, Cameron, Bryce and Chris Werner Bryce Werner was a regular middle-schooler living an average 12-year-old life in Pennsylvania when suddenly everything was thrown wildly left of normal [...]
Believe in Hope – A GIST Story
This story is shared by Virginia Terrebonne, GIST Patient and LRG Member, and is part of our Faces of Courage series. My name is Virginia VanMeter Terrebonne. I am a 56-year-old female originally from [...]
It’s a Journey: Our Experience on Clinical Trials
By Jennifer Moore, LRG Member I was waiting in line to pick up a new prescription for Gleevec when my husband ran in and told me to forget it. After two surgeries, a year [...]
Andrea Torres: A Story of Hope and Optimism
My name is Andrea Torres, and I am 24 years old. I am from Tegucigalpa, Honduras. I was diagnosed with GIST in December 2015 here in Honduras. I was 22 years old. It began [...]
A Message from GISTer Bella Rocco
About Bella At just seven years old, Bella Rocco was undergoing surgery after being diagnosed with a rare form of cancer—pediatric GIST. While GIST is considered a rare cancer, pediatric cases are even [...]
Social Media Helps Rescue Croatian Patient
Danijel Romic with his 2 children Danijel Romic, a 34-year old GIST patient from Crikvenica in Croatia, was faced with a challenge. Diagnosed with GIST in 2014, he did not have access to a [...]
GIST Superhero Profile: Cindy Farr
In honor of our H.E.R.O. campaign, we are profiling our GIST SuperheroesBy Belinda Gist, Guest Contributor Romans 12:12 "Rejoicing in hope; patient in tribulation; continuing instant in prayer..." GIST Superhero Cindy Farr Let me introduce you to [...]
Support from the Heart – Caregiver Suzy Burke
My name is Suzy Hetherton Burke, I’m 66 years old and happily retired! I grew up in New Jersey, graduated from Rosemont College in PA and moved to NYC after graduation. Charlie and I met, [...]
Cancerversary – Kimberly Glass, 10 years
I celebrate my ten-year “cancerversary” on January 31st. I can’t believe it’s been 10 years! I will celebrate by spending some intentional time with my family, including my beautiful 16 month-old daughter, Katelyn. My wish [...]