Rare Diagnosis Fosters a Passion for Biomarker Testing & Self-Advocacy

GISTer Bill Borwegan shares his inspiring GIST journey illustrating the importance of biomarker/ mutational testing and self-advocacy as a rare disease patient.

By |2021-06-29T11:57:41-04:00June 29th, 2021|Member Stories, News, Newsletter|

Cupcake Records Honors Lorie (Skelton) Perry

Lorie (Skelton) Perry was a GIST patient who passed away on November 11th, 2020.  She was known to her family for many things.  Among them were her warmth, her willingness to help others, and her talents as a baker. Her family wanted to find a way to honor her memory with a fundraiser.

By |2021-02-23T11:38:41-05:00February 24th, 2021|Fundraising, Member Stories, News|
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