Member Stories

/Member Stories

The Werners – Finding the New Normal Living with Wildtype GIST

Left to right: Arianna, Tiffany, Cameron, Bryce and Chris Werner Bryce Werner was a regular middle-schooler living an average 12-year-old life in Pennsylvania when suddenly everything was thrown wildly left of normal [...]

By | 2018-07-06T12:25:25+00:00 June 29th, 2018|Member Stories, News, Newsletter|

It’s a Journey: Our Experience on Clinical Trials

By Jennifer Moore, LRG Member I was waiting in line to pick up a new prescription for Gleevec when my husband ran in and told me to forget it. After two surgeries, a year [...]

By | 2018-07-16T11:12:33+00:00 December 28th, 2017|Clinical Trials, Member Stories, News, Newsletter|

Social Media Helps Rescue Croatian Patient

Danijel Romic with his 2 children Danijel Romic, a 34-year old GIST patient from Crikvenica in Croatia, was faced with a challenge. Diagnosed with GIST in 2014, he did not have access to a [...]

By | 2018-07-05T19:39:46+00:00 September 18th, 2017|Coping with GIST, Member Stories, News, Newsletter|

Cancerversary – Kimberly Glass, 10 years

I celebrate my ten-year “cancerversary” on January 31st.  I can’t believe it’s been 10 years!  I will celebrate by spending some intentional time with my family, including my beautiful 16 month-old daughter, Katelyn.  My wish [...]

By | 2017-02-24T10:28:26+00:00 February 24th, 2017|Cancerversary, Member Stories, Newsletter|

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