By Jennifer Moore, LRG Member I was waiting in line to pick up a new prescription for Gleevec when my husband ran in and told me to forget it. After two surgeries, a year on 400 mg of Gleevec and a miserable few weeks on Sutent, Owen had a few rogue tumors that continued to […]
BLU-285, Clinical Trial, D824V, Jennifer Moore, member stories, OHSU, Owen Moore
My name is Andrea Torres, and I am 24 years old. I am from Tegucigalpa, Honduras. I was diagnosed with GIST in December 2015 here in Honduras. I was 22 years old. It began when I woke up one morning with a strong pain in my stomach. At first it was tolerable, but after a […]
Andrea Torres
About Bella At just seven years old, Bella Rocco was undergoing surgery after being diagnosed with a rare form of cancer—pediatric GIST. While GIST is considered a rare cancer, pediatric cases are even rarer with very limited treatment options. Despite having a successful first surgery, Bella experienced recurrences of her disease several years later. The […]
Bella Rocco, Giving Tuesday, Holiday Campaign 2017, Holiday2017, pediatric GIST
Danijel Romic, a 34-year old GIST patient from Crikvenica in Croatia, was faced with a challenge. Diagnosed with GIST in 2014, he did not have access to a potential life-saving treatment, Nexavar, which in Croatia is not registered for the treatment of GIST. He reached out on Facebook, including to the Life Raft Group page, seeking assistance. […]
Danijel Romic, Nexavar, SDH B Wildtype, Social Media