SDH-Deficient GIST

/SDH-Deficient GIST

17th NIH Pediatric and Wildtype GIST Clinic Held

The 17th Pediatric and Wildtype GIST Clinic was held at the National Institutes of Health in Bethesda, Maryland on September 25-27, 2019. The Clinic was a collaboration amongst researchers, specialists, patient advocates, patients, and family members, with the goal of furthering the knowledge of SDH-deficient Gastrointestinal Stromal (GIST) tumors in order to develop more effective therapies.

By |2019-10-07T15:49:22-04:00October 7th, 2019|News, Research, SDH-Deficient GIST|

Treatment Responses in SDH-deficient GIST – LRG Science

The latest issue of LRG Science is titled, "Patient-reported Treatment Responses in Known/Likely SDH-deficient GISTS: An Analysis of The Life Raft Group Observational Registry." This study highlights the very unique research role that defines The Life Raft Group. Subscribe to LRG Science by emailing mgarland@liferaftgroup.org with the subject line SUBSCRIBE LRG SCIENCE.

By |2019-09-27T10:20:42-04:00August 13th, 2019|LRG Science, News, SDH-Deficient GIST|

LRG Webcast Series: Novel Therapies in GIST

SPAEN (Sarcoma Patients EuroNet) Presents Webinar Webinar "Novel therapy options in GIST: What's on the horizon?" was presented by Dr. Jonathan Trent, Professor of Medicine, Associate Director, Clinical Research Director, Sarcoma Medical Research Program [...]

By |2019-08-14T13:36:30-04:00July 31st, 2019|GIST Education, SDH-Deficient GIST, Webcast|

Pediatric & SDH-Deficient GIST Consortium Update

Setting the Pace for the Future In July of 2018 at Life Fest, The Life Raft Group brought together a team of pediatric & SDH-deficient GIST experts for a symposium focused on this rare [...]

By |2019-02-21T16:00:26-04:00February 21st, 2019|News, Newsletter, Pediatric GIST, SDH-Deficient GIST|

The Pediatric & SDH-Deficient GIST Consortium

Our Commitment to the Biden Cancer Initiative We are excited to launch an innovative initiative to strengthen and advance research for effective treatments of a rare subset of Gastrointestinal Stromal Tumor (GIST) patients, who [...]

By |2018-10-30T12:14:09-04:00October 24th, 2018|Advocacy, Newsletter, SDH-Deficient GIST|

Norman J. Scherzer presenting the Pediatric & SDH-Deficient GIST Consortium at the Biden Cancer Summit

Norman J. Scherzer of the Life Raft Group presenting the Pediatric & SDH-Deficient GIST Consortium at the Biden Cancer Summit. Learn More about the Pediatric & SDH-Deficient GIST Consortium [...]

By |2018-10-29T13:31:36-04:00September 26th, 2018|News, SDH-Deficient GIST, Video|

The Life Raft Group Announces an Innovative Consortium to Accelerate Cancer Research at the Biden Cancer Summit

WAYNE, N.J. and WASHINGTON, D.C. (September 21, 2018) - The Life Raft Group announces at the Biden Cancer Summit a new initiative to strengthen and advance research for effective treatments of a rare subset of [...]

By |2019-04-19T12:41:47-04:00September 21st, 2018|News, Pediatric GIST, Research, SDH-Deficient GIST|

Introducing the NIH-LRG Pediatric GIST Virtual Tumor Board

The Life Raft Group is excited to announce that we will be partnering with the National Institutes of Health to launch the first Pediatric GIST Virtual Tumor Board!* Due to severe funding cuts that reduced [...]

By |2019-04-05T11:04:10-04:00April 11th, 2014|GIST Education, News, Pediatric GIST, SDH-Deficient GIST|