Pediatric GIST

New Study Aids in the Diagnosis of Hereditary Paraganglioma and Pheochromocytoma

A recent study in Cancer Genetics, International initiative for a curated SDHB variant database improving the diagnosis of hereditary paraganglioma and pheochromocytoma, is important for GIST patients who carry a germline SDHB mutation

By |2021-09-09T11:41:15-04:00September 9th, 2021|News, Pediatric GIST, Research, SDH-Deficient GIST|

NIH Pediatric & Wildtype GIST Clinic 2021 Applications Are Open!

The LRG will be collaborating with the NIH again in 2021 to hold the Virtual GIST Tumor Board in place of the NIH's Pediatric & Wildtype GIST Clinic normally held in the DC area. Applications to have cases reviewed are now open.

By |2021-04-23T10:48:08-04:00April 29th, 2021|News, Pediatric GIST, SDH-Deficient GIST|

Pediatric & SDH-Deficient GIST Consortium Update

Setting the Pace for the Future In July of 2018 at Life Fest, The Life Raft Group brought together a team of pediatric & SDH-deficient GIST experts for a symposium focused on this rare [...]

By |2019-02-21T16:00:26-05:00February 21st, 2019|News, Newsletter, Pediatric GIST, SDH-Deficient GIST|

The Life Raft Group Announces an Innovative Consortium to Accelerate Cancer Research at the Biden Cancer Summit

WAYNE, N.J. and WASHINGTON, D.C. (September 21, 2018) - The Life Raft Group announces at the Biden Cancer Summit a new initiative to strengthen and advance research for effective treatments of a rare subset of [...]

By |2019-04-19T12:41:47-04:00September 21st, 2018|News, Pediatric GIST, Research, SDH-Deficient GIST|

A New Lifeline – The Pediatric & SDH-Deficient GIST Consortium

The Life Raft Group is excited to cast a new lifeline to increase the quality of life and survival rates of Pediatric and SDH-Deficient GIST patients worldwide through the establishment of a collaborative research consortium. The Pediatric & SDH-Deficient GIST Consortium, unveiled today at the Biden Cancer Summit, supports patients and caregivers at a critical time to share data, tissue, and resources to address the urgency of cancer treatment.

By |2019-09-23T14:37:20-04:00September 21st, 2018|News, Pediatric GIST, Research|

Life Fest Pediatric/SDH Deficient GIST Track Provides Wealth of Information

The 2018 Life Fest Meeting was held in Miami on July 13 - 15 and was attended by 140 patients, friends, family and caregivers. This was a truly international event, with participation from 20 [...]

By |2019-04-19T12:42:57-04:00August 15th, 2018|Events, Pediatric GIST|

NIH Clinic Combines Research, Knowledge, and Hope

I had the pleasure of attending the 15th Pediatric and Wildtype Clinic along with Becky Owens from GIST Support International as patient advocates. The Clinic was held at the National Institute of Health in [...]

By |2018-10-29T14:00:41-04:00September 18th, 2017|News, Newsletter, Patient Support, Pediatric GIST|

15th Pediatric and Wildtype Clinic Provides Support and Education

The 15th Pediatric and Wildtype GIST Clinic was recently held at the National Institute of Health in Bethesda, Maryland on July 5 - 7, 2017. The Clinic is a collaborative effort between clinicians and [...]

By |2018-10-29T14:03:07-04:00August 16th, 2017|GIST Education, News, Pediatric GIST|

14th NIH Pediatric and Wildtype GIST Clinic Convenes

If you have a mutation of any of the SDH subunits (a,b,c, or d), the next important question to ask is whether or not it is a germline mutation. (So far, data has indicated that 80% of SDH-deficient tumors are germline). The term "germline" means that the mutation is present in every cell of your body. Germline mutations are hereditary, and can be passed on to your children. For this reason, genetic testing and counseling could be informative for parents, siblings and other family members. If a family member tests positive for the mutation, this does not mean that they will get GIST.

By |2019-11-08T10:25:09-05:00June 23rd, 2016|News, Pediatric GIST|
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