LRG Advocacy Efforts at Home and Abroad
View our SideEQ article in our October issue The week of October 16 was a busy one for the Life Raft Group’s advocacy efforts. The week began with a trip to the [...]
Local Advocacy: LRG supports NJ Bill A-2337
Although GIST is among the few rare diseases that has available drug therapy treatment options, the cost of these lifesaving medications can sometimes impose deep financial hardship, depending on the terms of the patient’s [...]
LRG Supports New Jersey Legislation to Limit Patient Cost Sharing
Although GIST is among the few rare diseases that has oral chemotherapy drug treatment options available to its patients, the cost of affording these life saving medications can sometimes impose deep financial hardship depending [...]
On The Road with the LRG: NCATS Presentation
On Tuesday, January 12, a small delegation of LRG staff journeyed to Washington, DC, to make a presentation to the executive leadership of the National Center for Advancing Translational Science (NCATS). The team from [...]
Connective Tissue Oncology Society (CTOS) Annual Meeting Update
Today’s researchers estimate that there are over 200 classified cancers today and that one out of three people will be affected by it at some stage in their life. With the extreme prevalence of cancer [...]
Patient Advocacy: You Can Make a Difference
At The Life Raft Group we are thankful to have a strong and motivated member community. Despite dealing with their own diagnoses, ongoing care and side effects, members often tell us, “I want to [...]
Informative Webcast Sheds Light on Mutational Analysis
Dr. Chris Corless In August, the LRG Webcast Series presented “Mutational Analysis of GISTs: How, When and Why.” Dr. Christopher Corless of Oregon Health and Science University (OHSU) presented the hour- long [...]
On the road with Milly: Toto, We’re Not in D.C. Anymore!
Hi friends, It's time to begin the second leg of this super trip. So with a heavy heart and a heavier suitcase we bid goodbye to OVAC Lobby Day and Washington D.C. That's right- we! [...]
On the Road with Milly: LRG Takes the Hill
Hi friends,The day has come. Our GIST Advocacy Avengers (it's a working title) have been prepped, scheduled and prepped some more in order to take on their string of meetings with policymakers on Capitol Hill. [...]
On the road with Milly: Live from Washington – Training for the Hill
Live From Washington- Training for the Hill By Mildred Menos Hi friends (see how close we've gotten already?), Your trusty reporter Milly here, reporting live from Capitol Hill. Oh, wait, not yet, technically right [...]