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PAWS-GIST Cancer Clinic Opens in the UK

Jayne Bressington, Patient Director of the PAWS-GIST Initiative & Trustee of GIST Support UK The first national Pediatric, Adolescent, Wild-type and Syndromic GIST (PAWS GIST) clinic in the United Kingdom was held on [...]

By |2018-07-27T09:29:08-04:00October 24th, 2014|Global, News, Patient Support, Pediatric GIST|

NIH Clinic provides support and a healthy dose of fun

The 12th Pediatric and Wildtype GIST Clinic was held May 21 to 23, 2014 at the National Institutes of Health in Bethesda, Maryland. Coordinated by Dr. Sosipatros Boikos, and based out of the NIH Pediatric Oncology Department under the direction of Dr. Lee Helman, the Clinic is collaboration between clinicians and researchers to collect data, investigate and develop treatment for GIST patients who do not have either c-KIT or PDGFRA mutation.

By |2019-09-20T11:29:57-04:00July 2nd, 2014|Advocacy, GIST Education, News, Patient Support, Pediatric GIST|

Introducing the NIH-LRG Pediatric GIST Virtual Tumor Board

The Life Raft Group is excited to announce that we will be partnering with the National Institutes of Health to launch the first Pediatric GIST Virtual Tumor Board!* Due to severe funding cuts that reduced [...]

By |2019-04-05T11:04:10-04:00April 11th, 2014|GIST Education, News, Pediatric GIST, SDH-Deficient GIST|

An advocate’s rewarding experience at the NIH Clinic

NIH Clinic Participants From the moment I landed at the Washington Reagan Airport to the time I took off to fly back home, the Pediatric and Wildtype GIST Clinic at the National Institutes [...]

By |2019-09-20T12:20:35-04:00August 9th, 2013|Advocacy, Events, News, Pediatric GIST|

Sosipatros Boikos takes helm at NIH Clinic

Dr. Sosipatros Boikos, a graduate of University of Crete in Greece, very early and while he was a first year medical student, developed an interest in cancer genetics. After graduating from medical school, he came to the National Institutes of Health as a Visiting Research Fellow to work on the genetics of Wildtype gastrointestinal stromal tumors—those GIST tumors without a KIT or PDGFRA mutation—under the supervision of Dr. Constantine Stratakis, the researcher who identified Carney-Stratakis Syndrome.

By |2019-09-20T12:16:19-04:00August 9th, 2013|Clinical Trials, Events, News, Pediatric GIST|

Graduating, Birth, Marriage. What Can’t GISTers do?

Pediatric GISTer, Sile Bao graduated on May 19 and already started her first job at Princeton University in July. Ashley Young Vincent, gave birth to a beautiful baby girl named Lily on June 24. GISTer Mo Collins, married her partner, Alex Skuby on June 25 in a lovely ceremony.

By |2019-11-08T10:15:52-05:00August 9th, 2013|Coping with GIST, Member Stories, News, Pediatric GIST|

Fertility preservation in young cancer patients promoted by ASCO

The American Society of Clinical Oncologists (ASCO) and Livestrong Foundation have launched a video on YouTube to promote discussion of fertility preservation in young cancer patients. Keep reading to learn more.

By |2017-03-31T13:00:45-04:00June 18th, 2013|News, Pediatric GIST|
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