The LRG Strategic Plan
The Life Raft Group is expanding its impact, using data and collaboration to drive progress in GIST and rare diseases.
LRG Athletes Program
Announcing the new LRG Athletes Program - patients & caregivers use their passion for movement to build community & to support the LRG.
Patient of the Month – January 2025: Fruzsina Megyesi-Vizli
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Fruzsina Megyesi-Vizli shares her story.
The Global Advocate Academy Course (GAAC)
The New Horizons GIST Consortium has created a Global Advocate Academy Course (GAAC) targeted towards GIST patients, caretakers, oncologists, researchers, and organization representatives located worldwide.
Patient of the Month – December 2024: Alex Kozushin
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Alex Kozushin shares his story.
Importancia del diagnóstico molecular en el GIST
El diagnóstico molecular en GIST impulsa tratamientos personalizados y más eficaces, dando forma al futuro de la precisión en la medicina.
Impact of Molecular Diagnosis in GIST
Molecular diagnosis in GIST drives personalized, more effective treatments, shaping the future of precision medicine.
Coping During the Holidays
The holiday season is a time filled with festive gatherings, family traditions, and social expectations, but it can be challenging for individuals with a rare disease. Read more for some tips to have a joyful, peaceful season.
Give Hope for the Holidays!
For rare disease patients, hope becomes more than a feeling; it’s a vital part of the journey. During the holidays, this sense of hope carries a unique importance. Our Hope for the Holidays campaign will bring you stories of hope & resilience.
Removing Roadblocks to a Cure – GISTT Summit 2024
Roadblocks to a cure - a review of first GISTT Summit 2024 in Essen, Germany by participant LRG Data Analyst Jerry Call.
