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A ‘Clinical Trial of One’

October's LRG newsletter features artist Douglas Morgan, who found himself with a rare GIST mutation and no treatment options until an innovative oncologist and a compassionate gesture by a pharmaceutical company gave him a chance to receive a unique treatment.

By |2019-11-08T11:08:49-05:00October 29th, 2019|Clinical Trials, Member Stories, News, Newsletter|

Partnering with Selnet

The Life Raft Group is pleased to announce a new partnership with SELNET, a project which is creating a multidisciplinary network of European and Latin American clinical and translational specialists. This project’s goal is to improve diagnosis and clinical care in sarcomas and  establish guidelines for referral policies, diagnostic methods, clinical practice guidelines among other necessary changes to current practices.

By |2019-10-30T11:01:48-05:00October 29th, 2019|News, Newsletter|

Collaborating with the NCCN FOUNDATION

The NCCN Foundation produces patient booklets that contain evidence-based disease information and important guidance to help patients formulate questions that are important to them. The Life Raft Group, a leading patient advocacy organization, is working with the Foundation to endorse these guidelines.

By |2019-10-30T11:32:43-05:00October 29th, 2019|News, Newsletter|

First Symposium on Personal Control of Genomic Data for Research Held at NIH

Symposium aimed to accelerate cancer research and to make more therapies available to more patients, while also improving our ability to prevent cancer and detect it at an early stage through individual projects.

By |2019-10-30T10:59:28-05:00October 29th, 2019|News, Newsletter|