Fifth Annual Water of Life Fundraiser 2019
Dr. Matthew Lurin’s Fifth Annual Water of Life Whisky fundraiser was held on May 16th at the Manhattan Center Ballroom in New York City. There were over 150 people in attendance which [...]
Update on a New Clinical Trial Offered to Eligible GIST Patients
Deciphera Pharmaceuticals is testing an investigational drug called ripretinib (DCC-2618) as a potential new treatment option for patients living with GIST. About Ripretinib Ripretinib is an oral investigational drug designed to treat GISTs that [...]
On the Speaking Circuit with The LRG
Norman Scherzer was invited to speak at three prestigious events this spring; participating in a roundtable discussion, presenting a cancer survival plan, and speaking to a patient advocacy group. As a direct [...]
LRG Webcast: Symptom and Side Effect Management
Symptom and Side Effect Management of GIST Treatment Listen to the Webcast GIST and its treatment can cause a variety of symptoms. Adequate management of symptoms can improve a patient’s quality [...]
GIST Day of Learning – GDOL Tampa
The Life Raft Group held a GIST Day of Learning (GDOL) in Tampa, at Moffitt Cancer Center, on May 16th, 2019. This was the first GDOL presented in Tampa. GDOLs are free, one-day programs [...]
One Voice Against Cancer (OVAC) Advocates for Cancer Patients
OVAC is a coalition of over 50 nonprofit cancer organizations that advocate on behalf of cancer patients to deliver a unified message to Congress and to the White House on the need for increased [...]
The LRG GIST Peer Support Program
Sharing Your Experience by Being There for Other GIST Patients and Caregivers Last month, we posted information on our new program to support our members. The GIST Peer Program is an additional support system [...]
ISPOR 2019
The Future of RWE & Improving the Quality of Patient Survival Two members of The LRG staff recently attended the annual ISPOR meeting in New Orleans. ISPOR (International Society for Pharmaceutical Economics and Outcomes [...]
Stepping into Personalized Side Effect Management with SideEQ
What Can SideEQ Do for You? What is personalized side effect management, and why is it important for your survival and quality of life? “Never judge a person until you’ve walked a mile in [...]
Hope Prevails
At 39-years-old, Fatema Suterwala was preparing to say goodbye to her husband and young son. Confused by this cruel twist of fate and wracked with pain, she was saved by a collaboration of medical [...]
