Join a mission-driven team working to improve survival and quality of life for people living with GIST and other rare cancers. At the LRG, every role contributes to research, education, advocacy, and patient support that helps ensure no one faces rare disease alone.
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Gentry Trice shares her story.
The GIST Summit 2026, held on March 21, at MD Anderson Cancer Center in Houston was a highly successful collaborative event that brought together approximately 125 patients, caregivers, medical professionals, and subject matter experts from across the country.
Let's talk about histotripsy and sarcoma - what is the potential of this new procedure?
Simran Singh, Data Mgmt. & Research Manager, traveled to Texas to give a presentation on the LRG and the patient journey to trial investigators at GSK.
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Barney Mulvihill shares his story.
Pharmaceutical companies may create an Expanded Access Program (sometimes called compassionate use) when a clinical trial is no longer enrolling but the medicine still shows promise.
Published on February 26, 2026, this international study represents a major collaboration between The Life Raft Group and thirty-five leading cancer centers across the U.S., Europe, and Japan to better understand treatment for gastrointestinal stromal tumors (GIST) with KIT exon 9 mutations.
The role of caring for someone you love with sarcoma arrives without training, without a handbook, and usually without a support system. We understand your situation and want to help.
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Carolyn & Mark shares their story.
