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  • What is GIST?
    • Patient Resource Toolkit
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      • KIT/PDGFRa Mutant GIST
      • SDH-Deficient GIST
      • Familial GIST
      • eGISTs
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International News

Home/International News
International NewsLRG Staff2020-05-07T16:57:34-04:00
  • LRG News Icon
Diana Nieves2021-12-29T15:29:07-05:00

A Conversation with a Few of Our Global GIST Mentors

Diana Nieves2021-12-29T15:29:07-05:00

n June 2021, we trained seven LRG members from Austria, Canada, Chile, India, and Singapore. LRG’s Global GIST Mentors are survivors or caregivers who volunteer their time, energy, and talent to support others.

  • LRG News Icon
LRG Staff2021-09-08T15:27:33-04:00

Australian GIST Advocates Overcome Payer Obstacles Concerning Qinlock

LRG Staff2021-09-08T15:27:33-04:00

Australian GIST Advocates Overcome Payer Obstacles Concerning Qinlock. 4th line drug approval was approved! GISTer Sarah McGoram shares the news.

  • colectivo gist espana logo
LRG Contributor2021-07-30T11:03:57-04:00

Actualización realizada por dos prestigiosos especialistas internacionales en GIST

LRG Contributor2021-07-30T11:03:57-04:00

Publicado por Colectivo GIST España - Concluimos el mes dedicado a la concienciación del sarcoma & GIST publicando una actualización del tratamiento para los tumores GIST avanzados.

  • GIST Chile
LRG Staff2021-07-30T10:35:26-04:00

‘Educa GIST’ por Fundación GIST Chile

LRG Staff2021-07-30T10:35:26-04:00

¿Necesita información sobre el GIST en español? Fundación GIST Chile ha creado un portal educativo sobre los cánceres gastrointestinales, incluido el GIST.

  • GIST Awareness Day 2021 feature image
LRG Staff2021-07-22T10:51:19-04:00

Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021

LRG Staff2021-07-22T10:51:19-04:00

Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021.

  • fundacion gist mexico feature image
LRG Contributor2021-06-30T11:53:11-04:00

The Eyes Don’t See What the Mind Doesn’t Know – GIST Education in México

LRG Contributor2021-06-30T11:53:11-04:00

Rodrigo Salas & Berenice Carbajal-López of Fundación GIST México illustrate how this organization is working to spread GIST awareness and education.

  • member stories
Carol Tordella2021-06-30T10:50:44-04:00

Spotlight on LRG Global Representatives – Nandini Dabbir, India

Carol Tordella2021-06-30T10:50:44-04:00

The newest GISTer to join the ranks of LRG Global Representatives is Nandini Dabbir of Hyderabad, India. She is a the Friends of Max City Chapter Leader & GIST Advocate working with the LRG to support GIST patients on their journey.

LRG Staff2021-06-10T15:31:15-04:00

New Horizons GIST Presents Webinar on Mutational Testing for Global Community

LRG Staff2021-06-10T15:31:15-04:00

This New Horizons GIST webinar is for GIST patients around the world. Hosted by SPAEN, this presentation focuses on mutational testing as a guide for the right therapy.

LRG Staff2021-06-01T09:33:52-04:00

Dae Shik Kang Walks to Spread Hope

LRG Staff2021-06-01T09:33:52-04:00

South Korean GISTer Dae Shik Kang, 62 years old, walked 430km (267 miles) to share hope and courage. Today Dae is still spreading hope & staying healthy.

  • Fundacion Gist Mexico
LRG Contributor2021-05-05T16:17:12-04:00

¿Qué debo hacer si presento fátiga?

LRG Contributor2021-05-05T16:17:12-04:00

"¿Qué debo hacer si presento fátiga?" aportado por Fundación GIST México.

  • colectivo gist espana logo
LRG Contributor2021-04-08T12:27:58-04:00

Colectivo GIST España – la importancia de conocer la mutación de tu gist – SDH – Abril 8, 2021

LRG Contributor2021-04-08T12:27:58-04:00

Lea el artículo para Colectivo GIST España sobre la importancia de conocer la mutación de tu gist - succinato deshidrogenasa - Abril 8, 2021

LRG Staff2021-04-06T15:01:50-04:00

New Horizons GIST: Special Topic – Mutational Testing

LRG Staff2021-04-06T15:01:50-04:00

This webinar is for all GIST patients around the world. Hosted by SPAEN (Sarcoma Patients EuroNet Association), this two hour New Horizons GIST presentation will focus on mutational testing in GIST as a guide [...]

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The Life Raft Group is a 501 (c)(3) non-profit organization (tax id: 82-0547746) providing support through information, education, and innovative research to patients with a rare cancer called GIST (Gastrointestinal Stromal Tumor). View our 990 Form here

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GIST knows no boundaries. The Life Raft Group focuses on several key pillars. One of those pillars is “to increase access to effective treatments worldwide.” We aid patients from the United Kingdom to India and Kenya, helping wherever GIST patients are in need. Our patient registry staff interacts with global patients daily. The LRG Patient Registry has members from 63 countries, with country liaisons from 61 countries. We present at international symposiums on GIST, support global advocacy issues, and work to establish alliances and collaborations. We want to ensure that GIST patients across the world have access to the best possible treatment.
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