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How to Educate Yourself on GIST Research – Searching the Web for GIST Science Publications

Life Raft Group Science Team Member Jim Hughes will present “How to Educate Yourself on GIST Research- Searching the Web for GIST Science Publications” to GIST patients & caregivers on April 30th, 2024 at 12pm ET. During this virtual presentation, Jim will outline the importance of patients and caregivers researching their cancer in order to best advocate for themselves. Jim will explain the importance of GIST publications and how to effectively do your own research, and how to work together with fellow community members to share research findings.

Please email srothschild@liferaftgroup.org to submit a question ahead of the presentation. 

Please note that this webinar is not a substitute for your physician’s guidance and care.

About Our Presenter

Jim Hughes

Jim Hughes
LRG Clinical Trials Database Coordinator/Science Team Member

Jim Hughes attended Kenyon College, Ohio and Loyola University, Chicago where he earned a BA in Philosophy. Between schools Jim served as an officer in the United States Army in the US and Vietnam and following his service worked in telecommunications for 35 years.

Jim and Margi are the parents of two children, Nancy and Jamie. Nancy Hughes Welsh was an early member of The Life Raft Group (2002). Nancy was diagnosed with leiomyosarcoma in 1991 at age 23. After ten years of surgery and chemotherapy Nancy was re-diagnosed with GIST in 2001. Nancy participated in the Phase Three imatinib trial in 2001 and the Phase Two sunitinib trial in 2003. Nancy’s GIST was eventually diagnosed as SDH epimutant and passed away in 2005.

Jim serves as a Life Raft Group Board Member, our Clinical Trials Database Coordinator and is a founding member of the LRG Science Team.

 

Thank you to our Webinar Sponsors!

Life Fest Sponsors 2024

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