Pediatric & SDH-Deficient GIST Consortium Meets
The Consortium met recently to review current projects & goals focused on increasing research & advancing treatments for SDH-def GIST.
Water of Life 2026 Recap
Our Water of Life whisky tasting fundraiser was a celebration of exceptional whisky, generosity, and support for the GIST community.
GIST Awareness Day – Celebrating Life
GIST Awareness Day is celebrated on July 13, started by The Life Raft Group in 2014 to bring awareness and raise funds for GIST research.
Highlights from the Updates from ASCO Webinar
Learn about the latest GIST research from ASCO 2026, including updates on two promising clinical trials exploring new strategies to treat advanced GIST and address treatment resistance.
Living Well with Sarcoma – Exercise & Nutrition
Discover practical nutrition, exercise, sleep, and stress management strategies to help improve quality of life while living with sarcoma.
Getting Involved in a Clinical Trial for GIST
Learn how clinical trials help improve GIST care and why exploring them early can be an important part of your treatment journey.
Are You Ready for a New Patient Registry?
The Life Raft Group launches a new, updated Patient Registry platform this July at Life Fest in Nashville on July 12. Are you ready?
Cogent Biosciences Welcomes Patient Advocates in Colorado
Executive Director Sara Rothschild visited the Cogent Biosciences labs in Colorado with other patient advocates in June.
Pediatric SDH-Deficient GIST Clinic at the NIH
Patients and leading specialists came together at the 2026 NIH SDH and Ultra Rare GIST Clinic to advance knowledge and improve care for GIST.
Patient of the Month – June 2026: Jodi Bachand
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Jodi Bachand shares her story.