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Increasing Survival without Borders

The Life Raft Group is pleased to announce the official establishment of our Regional Patient Registry, a partnership with Latin America, which will collect medical history and treatment information from more than 600 GIST patients who are represented by Fundación GIST Mexico, Fundación GIST Chile, and Pontificia Universidad Católica de Chile.

By |2019-12-18T14:34:24-05:00December 18th, 2019|Global, News, Newsletter, Patient Registry|

Finding a Ride to Your Doctor’s Appointments

Over 3.6 million people miss their medical appointments each year, preventing them from getting the care that they need or getting access to the medicine that could help them. People report that distance to the doctor’s office, cost of the transportation, and access to a driver or public transportation as the main reasons that they are having a challenge with transport.

By |2019-10-30T09:40:26-04:00October 29th, 2019|News, Newsletter, Patient Support|

News from the 17th NIH Pediatric and Wildtype GIST Clinic

The NIH Pediatric and Wildtype GIST Clinic is a collaboration amongst researchers, specialists, patient advocates, patients and family members, with the goal of furthering the knowledge of SDH-deficient gastrointestinal stromal tumors (GIST) in order to develop more effective therapies.

By |2019-12-19T11:25:54-05:00October 29th, 2019|News, Newsletter, SDH-Deficient GIST|