The Life Raft Group is pleased to announce the official establishment of our Regional Patient Registry, a partnership with Latin America, which will collect medical history and treatment information from more than 600 GIST patients who are represented by Fundación GIST Mexico, Fundación GIST Chile, and Pontificia Universidad Católica de Chile.
Wendy Williams became a member of The Life Raft Group in August of 2017. She was introduced to the LRG by one of her closest friends, Michelle MacLea, whose son Connor was diagnosed with SDH-deficient GIST in 2017.
The 16th annual Night to Fight Cancer (NTFC) took place on October 24th, 2019 at the Midtown Loft and Terrace in New York City. This annual event benefits The Life Raft Group’s research programs. LRG Board President Jerry Cudzil co-hosted the event with colleague, Matthew Knopman.
Raising awareness for the GIST community is important to the DeLorenzo family. Recently they held their 14th annual barbecue where friends and family gathered to fundraise for GIST research in support of The Life Raft Group.
The Chicago Area GIST Patients Support Group made history this year! This group has been meeting the longest of any LRG support group - continuously since 2002.
Over 3.6 million people miss their medical appointments each year, preventing them from getting the care that they need or getting access to the medicine that could help them. People report that distance to the doctor’s office, cost of the transportation, and access to a driver or public transportation as the main reasons that they are having a challenge with transport.
The mission of the Clinical Trials Transformation Initiative (CTTI) is to develop and drive the adoption of practices that will increase the quality and efficiency of clinical trials.
The NIH Pediatric and Wildtype GIST Clinic is a collaboration amongst researchers, specialists, patient advocates, patients and family members, with the goal of furthering the knowledge of SDH-deficient gastrointestinal stromal tumors (GIST) in order to develop more effective therapies.
Collaboration among patient groups and working together in setting common goals is vital. Together we can have a stronger voice to achieve our participation in the decision-making on health issues.
The College of American Pathologists (CAP) released an updated version of its GIST Biopsy and Resection Cancer Protocols. Pathologists use CAP Cancer Protocols in the process of diagnosing a disease.