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What is GIST?
About LRG
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hPPGL syndrome

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hPPGL syndrome

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LRG Webcast Series: hPPGL Syndrome – a Misnomer with Consequences

Feb 11

LRG Webcast Series: hPPGL Syndrome – a Misnomer with Consequences

12:00 PM

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The Life Raft Group
155 US Highway 46, Suite 202
Wayne, NJ 07470 USA

Phone 973-837-9092
Contact us by email

The Life Raft Group is a 501 (c)(3) non-profit organization (tax id: 82-0547746) providing support through information, education, and innovative research to patients with a rare cancer called GIST (Gastrointestinal Stromal Tumor). View our 990 Form here

The information provided on the LRG site is designed to support, not to replace, the relationship that exists between a patient/site visitor and his/her physician. Read our Privacy Policy

International Patients

GIST knows no boundaries. The Life Raft Group focuses on several key pillars. One of those pillars is “to increase access to effective treatments worldwide.” We aid patients from the United Kingdom to India and Kenya, helping wherever GIST patients are in need. Our patient registry staff interacts with global patients daily. The LRG Patient Registry has members from 63 countries, with country liaisons from 61 countries. We present at international symposiums on GIST, support global advocacy issues, and work to establish alliances and collaborations. We want to ensure that GIST patients across the world have access to the best possible treatment.

International Patients - Advocacy & Information

The LRG website is dedicated in perpetuity to the memory of Mary S. Golnik.

Copyright 2025 The Life Raft Group | All Rights Reserved

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