LRG

Michael Shorb, California poet

Michael Shorb, dearly beloved husband of Judith Grogan-Shorb, passed away on August 8, 2012, from a very rare cancer. Born October 29, 1943, he was the son of the late Robert Shorb and Helen Thisted Shorb; brother to the late Beverly Gonzales and Paul Shorb. His other brothers and sisters: Jan Jupp, Myrna Todd, Keith Shorb, Nadine Morris, Bill Shorb and Glen Shorb. Michael was a poet and was published in over 100 poetry magazines and poetry anthologies.

By |2019-09-20T13:51:06-04:00August 8th, 2012|In Memoriam, News|

Ten Ways to Fundraise for the LRG

As the Life Raft Group celebrates its tenth anniversary and the achievements within the GIST community over the last 10 years, we are busy planning for the future. Our focus remains the same – to cure GIST and support those people affected by this disease until we do. In addition to the services we currently provide, the LRG is working to develop new programs to support our members while also improving our advocacy initiatives to increase GIST awareness and treatment access. The LRG will also continue to fund our research team who recently completed a two year strategic plan to move forward based on its most recent findings.

By |2019-04-22T09:20:42-04:00August 1st, 2012|Fundraising, News|

A Dutch youth’s global search for other patients with Carney’s Triad

Since he turned 14, Jasper Smit of the Netherlands has been searching for patients like him. This is very difficult because Carney’s Triad is an extremely rare syndrome. Worldwide there are about 30 known patients with a ‘complete’ Carney’s Triad (GISTs, pulmonary chondromas, paragangliomas). Incomplete Carney’s Triad affects less than 100 patients in the world. This means that they have two of the three types of tumor (mostly GISTs and pulmonary chondromas). In his own words, here is Jasper’s story.

By |2019-09-20T13:56:51-04:00August 1st, 2012|News, Pediatric GIST|

Identifying novel treatment options by defining molecular mechanisms

Written by Anette Duensing, M.D. Molecular mechanisms can help identify GIST treatment options. GISTs are the most common mesenchymal tumors of the gastrointestinal tract and are caused by activating mutations in the KIT or PDGFRA receptor [...]

By |2019-09-20T13:57:56-04:00August 1st, 2012|News|

I found a friend in the LRG

I was caught up in a whirlwind when I found out that I had cancer on a Monday morning in October of 2011. I was admitted to the hospital that same day in preparation to have emergency surgery the next morning to remove the tumors and then found out I had GIST - all in a 24 hour period! I felt like my world had turned upside down and shortly after that during my recovery, I was lucky enough to find Life Raft.

By |2019-09-20T14:25:37-04:00June 1st, 2012|News|

Ninth Swiss meeting covers uplifting topics

About 80 GIST patients, relatives, GIST experts, interested professionals, physicians and representatives of the pharmaceutical industry gathered at the Restaurant Au Premier at Zurich Main Station in Zurich on April 8 for the ninth meeting of the Swiss GIST group. A warm welcome was extended to special guests Candy Heberlein, President of the Swiss Foundation for the Promotion of Bone Marrow Transplantation, and Christel Jäger-Freysoldt, chief executive of Das Lebenshaus in Germany.

By |2019-09-20T14:40:30-04:00June 1st, 2012|News|
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