Piga Fernández

About Piga Fernández

Piga Fernández, Santiago, Chile, is a Global Relations Consultant since 2009 for the Life Raft Group , a GIST Patient Organization. She founded and is the Executive Director of Fundación GIST Chile, a nonprofit organization dedicated to support GIST and other gastrointestinal patients through education, information, emotional support and advocacy, with the goal of having them experience a better quality of life. Additionally, She is also the Coordinator of Alianza GIST, a consortium of GIST groups in Latin America. Her advocacy efforts in Chile have led to important changes in her country, impacting both legislative change and raising awareness for rare diseases. A GIST patient who was diagnosed incorrectly in 1995 with leiomyosarcoma, she understands the importance of correct diagnosis and access to treatment. She plays an integral role in working with our international patients, to assure they receive the quality of care necessary to survive and thrive.

Rodrigo Salas encourages universities to discuss GIST and other rare diseases

Rodrigo Salas, the President of Fundación GIST México, participated in the XVL Ordinary Session of the Mexican Academy of Faculties of Medicine on April 19

By |2019-09-20T12:35:50-04:00June 11th, 2013|Advocacy, Global, News|

Alianza GIST Meets in Miami

From March 25 through 28 representatives of 12 Latin American countries got together in Miami with representatives of The Life Raft Group, The Max Foundation, American Cancer Society, CODEVIDA, SixDegrees and the pharmaceutical industry in order to update themselves about GIST treatment and get trained on how to improve education, advocacy and patient support for the GIST community in Latin America.

By |2019-09-20T15:04:52-04:00April 1st, 2012|News|

Alianza GIST update: CME & Access Discussed

On November 16, representatives of 10 countries, and Susana Sarabia from The Max Foundation, got together in a teleconference conducted by Vicky Ossio, Alianza GIST Coordinator, and Sara Rothschild, LRG Global Relations Director. Despite the difference in hours, all participated with great enthusiasm

By |2019-09-26T15:43:12-04:00December 1st, 2011|News|

Fight or flight: A chance encounter in the sky compels one GISTer to do her part

The power and magic of the solidarity around me does not cease to amaze me! I remember having received the gift of airplane tickets to travel to my checkups from good people that I didn't even know, and I remember with immense gratitude the support of my family and friends who looked after my children while I was away.

By |2019-12-26T14:28:54-05:00February 1st, 2011|News|
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