New steps have been taken in Chile that will benefit patients who need high cost treatments. Piga Fernández, LRG Global Consultant in Chile, together with representatives of 26 patient organizations has been working on [...]
What does Celebrating Christmas means to me? Life, hope, gratitude, a GIFT!!! After seven hard years living with a wrong diagnosis, in 2002 we found out that what I really had was a GIST – [...]
Alianza GIST members from Argentina, Bolivia, Brazil, Colombia, Chile, Cuba, Venezuela, Guatemala, Mexico, and Spain joined representatives from the Life Raft Group in Zurich, Switzerland from May 14 to 17. The major focus of the meeting was to develop a new methodology in order to move towards Alianza GIST autonomy.
Alianza GIST had the opportunity to give two presentations at the Fifth International Cancer Control Congress (ICCC5) in Lima, Peru at the beginning of November.
The Alianza GIST 2013 meeting in Miami marked an important milestone for GIST advocates as they embarked on a plan to build a self-sustainable organization in Latin America. “We were energized by the meeting and [...]
LRG Global Relations Coordinator Piga Fernández Kaempffer, a GIST patient, gave a conference about her own disease, drawing the attention of professionals, who carefully listened as she shared with them from her perspective the evolution of this pathology.
Rodrigo Salas, the President of Fundación GIST México, participated in the XVL Ordinary Session of the Mexican Academy of Faculties of Medicine on April 19
As Latin American members meet this week, Alianza GIST has added two representatives, from Brazil and Puerto Rico. Valaria Hartt joins us from Brazil, while Eileen Rolon will represent Puerto Rico.
Alianza GIST and Oncoguia have formalized a new partnership to work together to benefit GIST patients in Brazil. The first goal of this partnership is to identify GIST patients in the different regions of [...]
From March 25 through 28 representatives of 12 Latin American countries got together in Miami with representatives of The Life Raft Group, The Max Foundation, American Cancer Society, CODEVIDA, SixDegrees and the pharmaceutical industry in order to update themselves about GIST treatment and get trained on how to improve education, advocacy and patient support for the GIST community in Latin America.