Dr. Steven Bialick shares for our Hope for the Holidays 2025 campaign. Hope is showing up and connecting patients, clinicians, and advocates so no one faces this alone. DONATE TODAY: https://bit.ly/Give-2025 #HopeForTheHolidays #ThrivingTogether #sarcomaawareness #donate
Hope for the Holidays 2025 - Dr. Bialick
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GIST patient Courtney shares for our Hope for the Holidays 2025 campaign. Connection is the theme of this message and how important it is for an isolating rare disease like #GIST and in particular for a rare subtype #SDH-deficient GIST. DONATE TODAY: https://bit.ly/H4H-Courtney #HopeForTheHolidays #ThrivingTogether #sarcomaawareness #donate
Hope for the Holidays 2025 - Courtney
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The CTOS Annual Meeting is the yearly conference of the Connective Tissue Oncology Society, where global sarcoma experts share new research and clinical insights. Dr. Pawel Sobczuk of Vall d’Hebron Institute of Oncology highlighted key GIST-relevant findings presented at CTOS. Learn more about GIST: https://liferaftgroup.org/powered/ Join the Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/ DONATE: https://bit.ly/DonateLRG2025
Updates from CTOS 2025
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Director of Development, Brian, shares for our Hope for the Holidays 2025 campaign. Hope grows when GIST patients feel supported. Your donation powers the resources and community that make a difference every day. DONATE TODAY: https://bit.ly/Give-2025 #HopeForTheHolidays #ThrivingTogether #sarcomaawareness #donate
Hope for the Holidays 2025 - Brian
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GIST patient David shares for our Hope for the Holidays 2025 campaign. Giving brings hope and hope is so important when living with a rare disease like #GIST. Bring hope to our community by helping them be present for life's milestones. DONATE TODAY: https://bit.ly/Give-2025 #HopeForTheHolidays #ThrivingTogether #sarcomaawareness #donate
Hope for the Holidays - David
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GIST patient Chris shares for our Hope for the Holidays 2025 campaign. Giving brings hope and hope is so important when living with a rare disease like #GIST. DONATE TODAY: https://bit.ly/Give-2025 #HopeForTheHolidays #ThrivingTogether #sarcomaawareness #donate
Hope for the Holidays 2025 - Chris
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The Life Raft Group partnered with Deciphera Pharmaceuticals and Dr. Jonathan Trent of the Sylvester Comprehensive Cancer Center to present “ctDNA and the INSIGHT Study”. During this virtual presentation, Dr. Trent explained how ctDNA works as a non-invasive method to monitor mutations and disease progression, and how it may help personalize treatment strategies for GIST patients. Denisse Evans, Sr. Director of Data Management & Research for the LRG, presented the results and analysis of the LRG’s recent patient survey: Understanding Mutational and ctDNA Testing for patients in the U.S. She highlighted how patients currently access and understand testing, key barriers to uptake, and what these findings reveal about the real-world experiences of the GIST community. Denisse also discussed how these insights can help shape future education, advocacy, and research efforts to ensure patients have the tools they need to make informed decisions about their care. Learn more about GIST: https://liferaftgroup.org/powered/ Join the Life Raft Group: https://liferaftgroup.org/life-raft-group-membership-application-form/ DONATE: https://bit.ly/DonateLRG2025
ctDNA and the INSIGHT Study
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Rashi Kapoor of Sachin Sarcoma Society discusses barriers to GIST treatment. Co-Led by The Life Raft Group and the Sarcoma Patient Advocacy Global Network (SPAGN), New Horizons GIST convenes representatives from several countries to discuss critical information about GIST that impacts the global GIST patient and medical communities. New Horizons GIST Consortium has created a Global Advocate Academy Course (GAAC) targeted towards GIST patients, caretakers, oncologists, researchers, and organization representatives located worldwide. The GAAC covers topics integral to advocating for systems and policy changes within government, scientific, and pharmacologic settings. For more information or questions, please contact liferaft@liferaftgroup.org https://liferaftgroup.org/ https://www.sarcoma-patients.org/
New Horizons - Barriers to Sarcoma Treatment
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Jan Geissler of Patvocates & European Patient Advocacy Institute discusses evidence-based patient advocacy. Co-Led by The Life Raft Group and the Sarcoma Patient Advocacy Global Network (SPAGN), New Horizons GIST convenes representatives from several countries to discuss critical information about GIST that impacts the global GIST patient and medical communities. New Horizons GIST Consortium has created a Global Advocate Academy Course (GAAC) targeted towards GIST patients, caretakers, oncologists, researchers, and organization representatives located worldwide. The GAAC covers topics integral to advocating for systems and policy changes within government, scientific, and pharmacologic settings. For more information or questions, please contact liferaft@liferaftgroup.org https://liferaftgroup.org/ https://www.sarcoma-patients.org/
New Horizons - Evidence Based Advocacy
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