Life Raft Group member Jason DeLorenzo held his annual “DeLoBQ” fundraiser last month in Alexandria, Virginia. The BBQ has raised almost $2,000 thus far, and donations are still coming! Jason explains the growing success of [...]
The Life Raft Group’s first GIST Day of Learning event was a big success. Partnering with Jonathan C. Trent, M.D., PhD and University of Miami Sylvester Cancer Center, we were able to provide education and support for over 50 GISTers and caregivers.
From March 25 through 28 representatives of 12 Latin American countries got together in Miami with representatives of The Life Raft Group, The Max Foundation, American Cancer Society, CODEVIDA, SixDegrees and the pharmaceutical industry in order to update themselves about GIST treatment and get trained on how to improve education, advocacy and patient support for the GIST community in Latin America.
In addition to sharing hope and friendship, attendees will learn important facts about their cancer, prevailing treatment options, tests as indicators for treatment surveillance, and coping with dietary changes and side-effects of treatment.