A GIST Awareness Day event presented by Fundación GIST Chile on July 13, 2019 Día internacional de la concientización del GIST Colaboremos para lograr tener diagnósticos oportunos y tratamientos adecuados para los pacientes con GIST, [...]
Want to know more about GIST? Do you have some burning questions to ask GIST experts? Members of the LRG GIST Global Expert Surveillance Team will be at the LRG offices on May 8th at 1:00 pm [...]
Genetic Testing and SDHx Mutations: What do they have to do with PGL/GIST/Pheos? LISTEN TO WEBCAST This webcast will highlight how SDHx mutations impact risks for paraganglioma, pheochromocytomas, and GIST. We’ll discuss [...]
Dr. Baker presenting at Michigan GDOL The Life Raft Group held its first GIST Day of Learning (GDOL) in Michigan on October 27th in Ann Arbor. GDOLs are free, one-day programs that [...]
The second annual Water of Life whisky fundraiser was a night to remember! This year’s event, hosted by Dr. Matt Lurin to benefit the Life Raft Group, was held at Midtown Loft & Terrace [...]
The Water of Life event is the first annual whisky fundraiser hosted by LRG member, Dr. Mathew J. Lurin (co-founder of the Whisky Nerds). The word whisky (or whiskey) comes from the Gaelic uisce/uisge, [...]
Our first Chicago GIST Day of Learning (GDOL) was a huge success! Over 50 GISTers and their families gathered for a great day of learning, and sharing experiences. It was wonderful to get to meet so many new people and reconnect with old friends.
Life Raft Group member Jason DeLorenzo held his annual “DeLoBQ” fundraiser last month in Alexandria, Virginia. The BBQ has raised almost $2,000 thus far, and donations are still coming! Jason explains the growing success of [...]
The Life Raft Group’s first GIST Day of Learning event was a big success. Partnering with Jonathan C. Trent, M.D., PhD and University of Miami Sylvester Cancer Center, we were able to provide education and support for over 50 GISTers and caregivers.
From March 25 through 28 representatives of 12 Latin American countries got together in Miami with representatives of The Life Raft Group, The Max Foundation, American Cancer Society, CODEVIDA, SixDegrees and the pharmaceutical industry in order to update themselves about GIST treatment and get trained on how to improve education, advocacy and patient support for the GIST community in Latin America.