Patient of the Month for May: Chelsea Ozeri
As a part of our Faces of Courage series, we are featuring a patient story each month. Each one of our members has a unique story to tell, but they all reflect the intrinsic courage [...]
Patient of the Month for April: Brett Fisher
As a part of our Faces of Courage series, we are featuring a patient story each month. Each one of our members has a unique story to tell, but they all reflect the intrinsic [...]
Patient of the Month for March: Cynthia Pearce
As part of our Faces of Courage Series, we are featuring a patient story on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each year [...]
In Memoriam – Erlinda Adajar
Erlinda (Linda) Adajar, loving and dedicated wife, mother, grandmother, sister and friend, passed away on December 24, 2018 at Memorial Sloan Kettering Hospital in NYC. She was 77 years old. Linda was born on [...]
Global Representative Spotlight – Florence Thwagi, Kenya
My Journey with GIST My name is Florence Thwagi, and I am 53-years-old. I am an Executive Board Member of Henzo Kenya, an advocacy group that creates awareness and support GIST patients in Kenya. [...]
Holiday Campaign 2018 Update
Each one of our members has a unique story to tell, but they all reflect the intrinsic courage of those who face the challenges of cancer head on, with dignity, strength and passion for [...]
Patient of the Month for February: Kirk Clark
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
Patient of the Month for January: Theresa Rogers
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
Faces of Courage – Eve Evidon
My GIST Journey In early December 2008, I acknowledged that my stomach was not feeling normal. I felt better when I skipped meals and instinctively knew something was seriously wrong. I met with my [...]
Searching for Hope
In this article, Mom Glenda Swinbourn of Australia shares the story of her son Mitchell, a 13-year old with Carney-Stratakis Dyad. It is for patients like Mitch that the Pediatric & SDH-Deficient GIST Consortium was founded.