Are You Ready for a New Patient Registry?
The Life Raft Group launches a new, updated Patient Registry platform this July at Life Fest in Nashville on July 12. Are you ready?
Cogent Biosciences Welcomes Patient Advocates in Colorado
Executive Director Sara Rothschild visited the Cogent Biosciences labs in Colorado with other patient advocates in June.
Pediatric SDH-Deficient GIST Clinic at the NIH
Patients and leading specialists came together at the 2026 NIH SDH and Ultra Rare GIST Clinic to advance knowledge and improve care for GIST.
Patient of the Month – June 2026: Jodi Bachand
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Jodi Bachand shares her story.
From Patient Registry to a International Scientific Conference
Our study on NF1-associated gastrointestinal stromal tumors was accepted for presentation at ASCO this year - this milestones highlights the power of patient registries.
Long-Term GIST Survivors Share Advice
Long-term GIST survivors shared insights on expert care, self-advocacy, and the power of community while living with GIST.
SPAGN Conference 2026
The SPAGN Conference 2026 emphasized the power of patient involvement, collaboration, and whole-person care in improving sarcoma treatment and support.
LRG Athletes for GIST Hit Milestones!
LRG Athletes Toni Pauwels and Edoardo Leone reached inspiring race milestones while using their journeys to support and raise awareness for the GIST community.
Adventure in Nashville – See the Sights & Sounds
Find adventure in Nashville! Explore the sights and sounds of Music City while you're at Life Fest 2026.
Life Fest Nashville is Calling You!
Every two years Life Fest brings patients, caregivers, and experts together for a powerful weekend of connection, education, and support. 2026 takes us to Nashville!