The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Beloved husband, father, grandfather and trusted LRG Board Member, Bob Book passes away at 82
Bob Book, 82, of Carmel, Ind. passed away the morning of December 9, 2012. He was born on December 31, 1929 in [...]
Cesarini’s ten year GIST battle ends with family by her side
Maura Cesarini passed away on the fifth of January after a 10 year battle with GIST cancer. She died peacefully surrounded by [...]
Chilean GISTers and CML patients meet!
On Saturday December 15, 2012, a group of CML and GIST patients got together to summarize activities done during 2012, and celebrate the end of the year.
LRG Canada holds first GIST Day of Learning in Toronto
LRG Canada held it’s first GIST Day of Learning in November and Dr. David Josephy had nothing but great things to say the event...
LRG adds new local group leaders and international partners
Here is a listing of the newest LRG Group Leaders and International Partners. Welcome aboard! Newest local group leaders: Debbie Farmer - [...]
Life Fest 2012 hits big in Las Vegas!
Life Fest 2012 was not only the premier gathering of the Life Raft Group community but a celebration of our ten year anniversary as well!
Pediatric GISTer ties the knot!
Jason DeLorenzo, LRG member and pediatric GISTer, got married on November 17, 2012 to Jill Medhus.
LRG closes out 2012 in the spotlight: advocacy, support & research highlighted
The Life Raft Group is dedicated to the welfare and survival of GIST patients worldwide and we carry out our mission through research, patient support & education and advocacy. The LRG was highlighted in all three areas at the end of 2012 and we wanted to share the important work we’re doing with all of you.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
