The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Blueprint Medicines Announces Top-line Results from Phase 3 VOYAGER Trial
Blueprint Medicines Announces Top-line Results from Phase 3 VOYAGER Trial of Avapritinib versus Regorafenib in Patients with Advanced Gastrointestinal Stromal Tumor in patients with locally advanced unresectable or metastatic gastrointestinal stromal tumor (GIST).
GISTEntertainment Virtual Events
The LRG is offering virtual opportunities for you to connect with others and have fun while supporting our goal of raising funds for our GIST Community!
Patient of the Month for April: Linda McFarland
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Linda McFarland shares her story.
Immunocompromised or Immunosuppressed?
During this health epidemic, wondering about being immunocompromised is a valid concern for GIST patients whether NED or on treatment and best practices are outlined in this post as quoted by experts in cancer patient treatment.
Grief in Times of Crisis
You probably are very aware of the anxiety you are feeling since the onset of the COVID-19 pandemic. What you may not be aware of is the other emotion that has been weighing heavily on most of us these days: grief.
Dr. Jerome Adams Shares How to Create a Face Covering
Our Surgeon General, Dr. Jerome Adams, shares ways to create your own face covering in a few easy steps.
LRG Featured in the MyPART Minute
The LRG was featured in the MyPART Minute April edition, in the Advocacy Spotlight section, which detailed our mission, core values, and the story of our collaboration with the National Institutes of Health to create the annual NIH Pediatric and Wildtype GIST Clinic.
How to Balance Your Diet During the COVID-19 Pandemic
Nutritional status plays a very important role in the prevention and treatment of contagious and non-contagious diseases. In the frame of a health contingency, the use of strategies that strengthen our nutritional status and immune system is essential.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
