Patient of the Month for July: Robert Cabion
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Robert Cabion shares his story.
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Robert Cabion shares his story.
GISTer Bill Borwegan shares his inspiring GIST journey illustrating the importance of biomarker/ mutational testing and self-advocacy as a rare disease patient.
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Sherry Codner shares her story.
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Pamela Trovato Nau shares her story.
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Vicenta Salinas shares her story.
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Kamel Ahmed shares his story.
Lorie (Skelton) Perry was a GIST patient who passed away on November 11th, 2020. She was known to her family for many things. Among them were her warmth, her willingness to help others, and her talents as a baker. Her family wanted to find a way to honor her memory with a fundraiser.
The Life Raft Group is pleased to welcome Mr. Young Jae Kim (YJ) as the new LRG representative (liaison) in our global network!
The average GIST patient is in their 50s or older when diagnosed with GIST. The rare exception is usually a pediatric SDH- deficient GIST, but April’s case is a case of ‘the rarest of the rare’ in that she was only 20 years old when she first encountered GIST and was not SDH-deficient.
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Bonita Morgan shares her story.