*Please Note: Times and speakers may change. Please check back for updates.

Registration

Friday July 13Adult
3:00 pm - 5:00 pmRegistration
4:00 pm - 5:30 pmGIST 101
David Josephy
GIST Sarcoma Life Raft Group Canada
5:00 pm - 7:00 pmInformal Gathering in Lobby Bar

*Please Note: Adult and Pediatric tracks run on different schedules before lunch.

Main Program – Saturday July 14

Adult Pediatric 
7:00 am - 8:00 amBreakfast7:00 am - 8:00 amBreakfast
8:00 am - 8:45 am Side EQ and GIST Prime Sign Up8:00Opening Remarks
Sara Rothschild
The Life Raft Group
8:05 am - 8:30 amUnderstanding Pediatric & SDH-Deficient GIST
Lee Helman, MD
Children's Hospital Los Angeles

Moderator: Jonathan Trent, MD
8:45 amOpening Remarks
Norman J. Scherzer
The Life Raft Group
8:30 am - 9:30 amCurrent Research Findings from the US and European Clinics
Fernanda Arnaldez, MD
National Institute of Health (NIH)

Ramesh Bulusu, MD & Ruth Casey, PhD
UK PAWS GIST Clinic

Moderator: Jayne Bressington
9:00 am - 9:45 amContemporary Approach to GIST Patient Care
Jonathan Trent, MD
Sylvester Comprehensive Cancer Center

The GIST Clinical Trial Landscape
Michael Heinrich, MD
Oregon Health & Science University

Moderator: Norman Scherzer
9:30 am - 10:00 amThe Clinics and Genetics of Carney-Stratakis Syndrome and Carney Triad
Constantine Stratakis, MD
NIH

Moderator: Becky Owens
9:45 am - 10:30 amPharma Panel: Overview of Promising Trials for GIST
Blueprint Medicines
Deciphera Pharmaceuticals

Moderator: Norman Scherzer
10:00 am - 10:30 amWhat a Patient Should Know About Paraganglioma: For Our Children, For Our Future
Karel Pacak, MD, PhD
NIH

Moderator: Phyllis Gay
10:30 am - 10:45 amCoffee Break
10:45 am - 12:00 pmState of GIST: A Clinical Panel of Experts
Moderator: Jason Sicklick, MD
University of California San Diego

Surgeon: Ricardo Gonzales, MD
Moffit Cancer Center

Radiologist: Ty Subhawong, MD
Sylvester Comprehensive Cancer Center

Oncologist: Breelyn Wilky, MD
Sylvester Comprehensive Cancer Center

Pathologist: Markku Miettinen, MD, PhD
National Institutes of Health
10:45 am - 12:00 pmQ&A with Panel of Physician Experts
Moderator: Jayne Bressington
12:00 pm - 1:30 pmLunch & Celebration Ceremony

GIST Center of Excellence - Sylvester Comprehensive Cancer Center
Jeroen Pit Science Award - NIH Pediatric & Wildtype GIST Clinic
Allan Tobes Volunteer of the Year - MacLea Family and Dillon/Morales Family
1:30 pm - 2:00 pmRole of Mutational Analysis and Next Generation Sequencing in GIST
Andrew Rosenberg, MD
Sylvester Comprehensive Cancer Center

Moderator: Breelyn Wilky, MD
1:30 pm - 3:00 pm GIST Do It Activities
3:00 pm - 5:00 pm Pool Party!
2:00 pm - 2:30 pmRole of Integrative Medicine in GIST
Jorge Bordenave, MD

Moderator: Breelyn Wilky, MD
2:30 pm - 3:15 pmBreaking Down the Financial Concerns of Living with GIST

Presenter:
Kathy Sarmiento
Alliance for Aging

Panel Discussion:
LRG A3 Volunteer Insurance Committee
Julie Durkee-Chair
Carolyn DeWalt
Marlene Nei
Kay Stolzer

Moderator: Marlene Morales, MSW
3:15 pm - 3:30 pmCoffee Break
3:30 pm - 4:00 pmStrategies for Mental Health Wellness
Marlene Morales, MSW
Sylvester Comprehensive Cancer Center

Moderator: Breelyn Wilky, MD
3:30 pm - 4:00 pmThe SDH Pathway
Eyal Gottieb
Technion

Moderator: Becky Owens
4:00 pm - 5:00 pmSupport Group for Adult GIST Families
Facilitator: Dina Wiley, Hannah Marcus, Angela Edson
4:00 pm - 5:00 pmSupport Group for Pediatric GIST Families
Facilitator: Becky Owens
5:00 pm - 5:30pmCelebration of Life Ceremony

Sunday – July 15

TimeSession
7:30 am - 8:30 amGIST DO IT Walk
7:00 am - 8:00 amBreakfast
9:00 am - 9:05 amPresentation of the Clinician of the Year to Suzanne George, MD
9:05 am - 9:30 amTreating GIST Patients
Suzanne George, MD
Dana Farber Cancer Institute
9:30 am - 10:15 amCase Presentations by Clinicians
Suzanne George, MD
Dana Farber Cancer Institute

Ricardo Gonzales, MD
Moffit Cancer Center

Vaia Florou, MD
Sylvester Comprehensive Cancer Center

Moderator: Suzanne George, MD
10:15 am - 10:30 amCoffee Break
10:30 am - 11:00 amPanel of Patient Stories
Moderator: Laura Occhiuzzi
11:00 am - 11:30 amBe Your Own Advocate: Lessons from Patient Champions

Moderator: Laura Occhiuzzi
11:30 am - 12:00 pmThe Face of Courage: Closing Remarks
Norman J. Scherzer
The Life Raft Group

Core Values