Life Fest 2018 was held in Miami, Florida, July 13-15th. Along with the presentations by various experts, the program (view agenda) featured a Pediatric Track and our first GIST DO IT – Walk to Find a Cure. July 13th was also GIST Awareness Day (GAD) and presentations and photos from awareness events from around the world are available to view here.
Gallery
GIST 101: An Introduction to the Biology and Medicine of GIST
David Josephy
Life Raft Group Canada
Contemporary Approach to GIST Patient Care
Jonathan Trent, MD
Sylvester Comprehensive Cancer Center
The GIST Clinical Trial Landscape
Michael Heinrich, MD
Oregon Health and Science University
Role of Mutational Analysis and Next Generation Sequencing in GIST
Andrew Rosenberg, MD
Sylvester Comprehensive Cancer Center
State of GIST: A Clinical Panel of Experts
Jason Sicklick, MD, Moores Cancer Center, University of California, San Diego; Markku Martti Miettinen, MD, National Cancer Institute; Breelyn Wilky, MD, Sylvester Comprehensive Cancer Center; Ricardo Gonzalez, MD, Moffit Cancer Center; Ty Subhawong, MD, Sylvester Comprehensive Cancer Center
Role of Integrative Medicine in GIST
Jorge Bordenave, MD
Miami Integrative Health
Breaking Down Financial Concerns of Living with GIST
Marlene Morales, MSW
Sylvester Comprehensive Cancer Center
Kathy Sarmiento
Alliance for Aging
Pharma Panel: Overview of Promising Trials for GIST
“Apritinib Update for the GIST Patients & Caregivers”
Blueprint Medicines
Pharma Panel: Overview of Promising Trials for GIST
“Addressing Key Mechanisms of Tumor Drug Resistance”
Deciphera Pharmaceuticals
Case Presentations by Clinicians
Suzanne George, MD
Dana-Farber Cancer Institute
Case Presentations by Clinicians
Ricardo Gonzales, MD
Moffitt Cancer Center
Case Presentation by Clinicians
Vaia Florou, MD
Sylvester Comprehensive Cancer Center
Understanding Pediatric and SDH-Deficient GIST
Lee Helman, MD
Children’s Hospital Los Angeles
Current Research Findings from the US and European Clinics
Fernanda Arnaldez, MD
National Cancer Institute
Current Research Findings from the US and European Clinics
Venkata Ramesh Bulusu, MD
Cambridge University Hospitals, UK
Current Research Findings from the US and European Clinics
Ruth Casey, MD
Cambridge University Hospitals, UK
The Clinical and Molecular Genetics of Carney-Stratakis Syndrome and Carney Triad
Constantine Stratakis MD
National Institutes of Health
What a Patient Should Know About Paragangliaoma: For Our Children, For Our Future
Karel Pacak, MD PhD
National Institutes of Health
Q&A with Panel of Physician Experts
- Can you please tell me more about the guadecitabine clinical trial?
View Video
- How can advocates disseminate quality information about this rare disease to community oncologists?
View Video
- When should surgery be performed on SDH-Deficient GIST?
View Video
What is SDH, how is it related to cancer, and what can be done about it
Eyal Gottlieb, MSc, PhD
Technion-Israel Institute of Technology