Our members embody the meaning of courage, which according to the Merriam Webster dictionary is “The mental or moral strength to venture, persevere and withstand danger, fear or difficulty.”
Each member story is unique, but all reflect the intrinsic courage of those who face the challenges of cancer head on, with dignity, strength and passion for life.
Take a moment to listen to their voices.
Be amazed by what real courage looks like.
Member Stories are below.
If you would like to contribute your story, or, that of a loved one, please email us today. Feel free to include any images you would like us to use!
Also visit our In Memoriam section and our In Memoriam website to light a candle for love ones that have passed.
Member Stories
Patient of the Month for February: Kirk Clark
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
Patient of the Month for January: Theresa Rogers
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
Faces of Courage – Eve Evidon
My GIST Journey In early December 2008, I acknowledged that my stomach was not feeling normal. I felt better when I skipped meals and instinctively knew something was seriously wrong. I met with my [...]
Searching for Hope
In this article, Mom Glenda Swinbourn of Australia shares the story of her son Mitchell, a 13-year old with Carney-Stratakis Dyad. It is for patients like Mitch that the Pediatric & SDH-Deficient GIST Consortium was founded.
Patient of the Month for December: Wanda Sebestin
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
Patient of the Month for November: Greg Crow
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]






