About New Horizons
New Horizons GIST is a conference that traditionally focuses on a large annual conference gathering over 50 representatives from 30 countries to discuss critical information about GIST that impacts the global GIST patient and medical communities. Participants have opportunities to interact with leading GIST experts, learn new medical and scientific information about GIST, exchange best practices and discuss advocacy issues.
Presentations
Feedback from the Global GIST Community
Presentation of Survey Results
Norman Scherzer and Michelle Durborow – The Life Raft Group
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Emerging Therapies and Ongoing Trials in Advanced GIST
Dr. Suzanne George, Co-Clinical Director, Center for Sarcoma and Bone Oncology, Dana Farber Cancer Institute
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SDH Deficient GIST
Dr. Suzanne George, Co-Clinical Director, Center for Sarcoma and Bone Oncology, Dana Farber Cancer Institute
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GIST: Harnessing the Complexities of Cancer of its Care
Dr. William Tap, Chief, Sarcoma Medical Oncology Service, Memorial Sloan Kettering Cancer Center
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Circulating Tumor DNA in GIST and its Implications on Treatment
Dr. Ciara Kelly, Memorial Sloan Kettering Cancer Center
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Utilization of Real World Evidence Among Different Stakeholders
Moderator: Norman Scherzer, Executive Director, The Life Raft Group
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Patient: Rodrigo Salas, President, Fundacion GIST Mexico
The Role of a Patient Registry in Drug Access and Coverage in Mexico
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Physician: Dr. Suzanne George, Co-Clinical Director, Center for Sarcoma and Bone Oncology, Dana Farber Cancer Institute
How Data Informs Clinical Guidelines
Regulatory: Dr. Theresa M. Mullin, Director, Office of Strategic Programs, FDA Center for Drug Evaluation
and Research
Patient-Focused Drug Development: Identifying and Building Needed Data Sources to Integrate Patients’ Perspectives in Decision-Making
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Policy: Dr. Carl Asche, Professor & Director, Center for Outcomes Research University of Illinois College of Medicine; Member of International Society for Pharmacoeconomics and Outcomes Research (ISPOR)
Evaluation of Health Care Interventions and Big Data: Review of Associated Data Issues
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GIST Patient Journeys: Analysis of Patient-Reported Real World Experience Highlights Progress and Remaining Medical Need
Michelle Durborow, Senior Director of Scientific Operations, The Life Raft Group
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Access to GIST Treatment in Low and Middle Income Countries: The Good, The Bad, and The Ugly
Pat Garcia-Gonzalez, Executive Director, The Max Foundation
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Patient Forums: Telling the Patient Story and its Impact on Healthcare
Gerard van Oortmerssen, Chairman of Board of Contactgroep GIST, Netherlands
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Improving Patient Advocate-Patient Communication: Principles and Techniques
Amy Bruno-Lindner, President, GIST Support Österreich, Austria
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Photo Gallery can be viewed here.
Sponsors
