The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
Clinical Trials – Reforms Discussed to Meet Patient Needs
The conversations about improving clinical trials to better meet the needs of cancer patients continue, with two noteworthy arguments set forth recently. Both arguments address the need to rethink the design of clinical trials.
July Is Sarcoma Awareness Month
Sarcoma Awareness Month is upon us. It was only about a year ago when Maura Cesarini, a longtime Life Raft Group member, [...]
Anxiety Stays Long After Cancer
GIST patients deal with anxiety on a daily basis. A recent article in the New York Times has uncovered that anxiety actually lingers long after cancer.
Juicing can help ensure good nutrition
Juicing can help ensure good nutrition. Making your own juices with a wide variety of fruits and vegetables is one way of getting the vitamins and nutrients your body needs.
LRG researchers publish study on DREAM complex – an important regulator of GIST “cell sleep”
A study about the DREAM complex was published in the June issue of Cancer Research by LRG Research Team members Drs. Anette Duensing and Maria Debiec-Rychter.
Mind-Body Surgery Preparation Reduces Anxiety and Helps Healing
A recent article in CureToday.com revealed a study that shows how mind-body surgery prep may reduce anxiety. Keep reading for more information!
Michigan Local Group Meeting a Success
We had a good turnout at the Michigan LRG meeting on Saturday. Keep reading to learn more about the importance of local group meetings.
Your GISTory and Why it is Important!
Having your GISTory or medical summary up to date and handy when faced with a medical emergency, is crucial to have on hand, when making decisions on how to proceed with your care.