The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Immunotherapy Treatments for Cancer Key Topic at ASCO
Immunotherapy treatments garnered a great deal of attention at the Annual Meeting of the American Society of Clinical Oncology (ASCO). This [...]
Diana Smith Helps to Raise Awareness for GIST by Sharing Her Journey
Life Raft Group member, Diana Smith was recently featured in an article in Clarksville Tennessee’s Leaf Chronicle about GIST. The article quotes [...]
GIST Q&A with LRG Science Director Jerry Call on April 28
Join The Life Raft Group for a GIST Q&A with LRG Science Director Jerry Call to be held on April 28. Jerry will answer all of your GIST questions live!
Introducing the NIH-LRG Pediatric GIST Virtual Tumor Board
The Life Raft Group is excited to announce that we will be partnering with the National Institutes of Health to launch the [...]
Altered Taste Syndrome – Tips for Enjoying Food while Fighting GIST
There are a number of side effects caused by GIST medications. Altered taste syndrome is a common and annoying side effect for [...]
Restructuring Clinical Trials to Find a Cure
Research!America and the Pancreatic Cancer Action Network held a meeting in New York this year to discuss ways to restructure clinical trials to find a cure for cancer.
Pfizer Patient Program becomes Pfizer RxPathways
As of April 01, 2014 All Pfizer Patient Assistance Programs have been consolidated into one program called Pfizer RxPathwaysTM.
Camp Kesem Provides a Week of Fun to Children of Cancer Patients
Approximately less than one minute into talking with Mariel and Terrance Pridmore, one thing became very clear—they cannot wait to go back to camp.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
