The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Patient of the Month – April 2023: Adriana Perez Rotondo
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Adriana Perez Rotondo shares her story. #thrivingtogether
NCCN GIST Guidelines 2023 – What You Need to Know as a GIST Patient
NCCN recently updated the clinical practice guidelines in oncology for medical professionals for several types of cancer including GIST. These guidelines are a set of evidence-based recommendations for the diagnosis, treatment, and management of various types of cancer and define the recommendations for management, care, and treatment of all cancers in the US. What do you need to know?
Patient of the Month – February 2023: Randy Heiman
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Randy Heiman shares his story. #thrivingtogether
Join the LRG’s Vision – Thriving Together in 2023
The Life Raft Group is thankful to those who so generously supported us in 2022 and we hope you continue to support our new initiatives in 2023. #thrivingtogether
Progress in Precision Medicine for GIST Patients
These new data were presented by Dr. Sebastian Bauer and Dr. Breelyn A. Wilky during the 2023 January ASCO Plenary Series from the INTRIGUE Efficacy Results of ctDNA Analysis for GIST Patients.
Caregiver of the Month – January 2023: Andrea Mantilla
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Andrea Mantilla shares her story. #thrivingtogether
European Patient Cancer Coalition Publishes Patient Guide for Cancer Biomarkers
European Patient Cancer Coalition published Patient Guide for Cancer Biomarkers in January 2023.
GIST Advocate & Board Member Dr. mOe Anderson Shares Her Vision About Her TEDTalk Opportunity
GIST Advocate & Board Member Dr. mOe Anderson shares how she set her intentions on a vision board to give a TEDTalk and this happened for her in January 2023. #thrivingtogether
GLOBAL PARTNERS & AFFILIATIONS
