The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
The Importance of Research – Dr. César Serrano
In this installment of Fueling GIST Research, Dr. César Serrano shares on the importance of GIST research & collaboration among institutions to build a vision of new treatments & a cure.
Patient of the Month – June 2023: Simon Yeung
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Simon Yeung shares his story. #thrivingtogether
Cultivating Partnerships – ASCO 2023 Recap
Our Spring to GIST Awareness Day Campaign Continues! Our spring fundraising campaign is all about Fueling GIST Research and we will [...]
NCCN GIST Guidelines 2023 Patient Version
The NCCN updated the clinical practice guidelines in oncology for GIST and other cancers in April and now have released the patient guidelines. Find the links here.
Collaborations – New Horizons GIST Conference
Our Spring to GIST Awareness Day Campaign Continues! Our spring fundraising campaign is all about Fueling GIST Research and we will [...]
Caregiver of the Month – May 2023: Linda Geiss
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Linda Geiss shares her story. #thrivingtogether
Fueling GIST Research – Our Community in Action!
Accelerating GIST research is an important part of what we do at the LRG and we're asking you to join us this spring to raise funds towards GIST research. Read the ways you can be a part of Fueling GIST Research!
Fueling GIST Research – Our Community in Action!
Diana Nieves chatted with a group of fundraisers from our community - Jason DeLorenzo, Chelsea Madia and Dave Perry - who have combined GIST advocacy with a personal passion in their lives to raise funds for #GISTresearch.
GLOBAL PARTNERS & AFFILIATIONS
