The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
GIST Specialist Survey
This form is for medical oncologists and oncology surgeons, for inclusion in our GIST Specialist database. Please fill out the form and submit.
What’s Cooking at the “Cooking to Fight Cancer” FUNdraiser
John Abrams' Cooking to Fight Cancer Culinary FUNdraising event is only one month away! Read about the host restaurant, scan the menu, and register to join John today.
Summary of Phase 3 INTRIGUE Trial Published
This summary article helps explain the results of Deciphera's Phase 3 INTRIGUE trial as published in Future Medicine, authored by Marina Symcox & Robin L Jones.
GIST Mentor Holds Fundraising Cooking Event
GIST Mentor & Board Member John Abrams is hosting a fundraising event in Centennial, Colorado called Cooking to Fight Cancer.
Fueling GIST Research – Soaring towards the Goal and Beyond!
With your help Fueling GIST Research has soared to new heights! Here's the 'stellar' recap & the results of how our community has fueled GIST research for our Spring campaign.
Theseus Ends THE-630 Trial
Theseus Pharmaceuticals announced yesterday the discontinuation of enrollment in the Phase 1/2 study and terminating the development of THE-630 for GIST [...]
New Life Raft Group Paper Published
The LRG publishes, "Gastrointestinal Stromal Tumor Patients with Molecular Testing Exhibit Superior Survival Compared to Patients without Testing: Results from the [...]
The Importance of Research – Dr. César Serrano
In this installment of Fueling GIST Research, Dr. César Serrano shares on the importance of GIST research & collaboration among institutions to build a vision of new treatments & a cure.
GLOBAL PARTNERS & AFFILIATIONS
