For 25 years, The Life Raft Group (LRG) has stood as a beacon of hope and support for those facing Gastrointestinal Stromal Tumors (GIST). Rooted in research, education, and advocacy, we’ve remained dedicated to improving the lives of patients and caregivers. Now, as we embrace a broader focus on rare diseases, our commitment grows stronger. Together, with innovation, collaboration, and the power of data, we’re striving toward a future where rare diseases meet cures.
At the heart of everything we do are the people we serve. We’re here to empower patients and caregivers, equipping them with the tools they need to confidently face their journeys. Our efforts remain patient-focused, prioritizing quality of life. We know progress requires innovation, and we recognize that real change happens through collaboration — with patients, families, researchers, and advocates working as one.
So, what’s next?
Our Vision for the Future
We imagine a future fueled by data and collaboration, where patients no longer face these battles alone, and the solutions they need are within reach. To make this happen, we’ve built a strategic plan to guide us over the next five years.
How We’ll Navigate this Plan
Reach More Patients
- We’re doubling the number of new patients we assist each year, ensuring support reaches diverse communities and no one feels left behind. Whether through expanded services or tailored outreach, we’re committed to connecting with those in need.
Expand Our Scope
- While our roots are in GIST, rare diseases are vast and varied. We’ll broaden our focus to include three additional diseases, meeting new communities where they are and learning how best to support them.
Strengthen Connections
- Building community is about more than numbers—it’s about belonging. We aim to double the number of people actively engaging with our mission, from donors and volunteers to social media followers. We’ll also create stronger platforms for patients to share their stories, give feedback, and feel truly heard.
Innovate in Data and Research
- Imagine a Patient Registry that doesn’t just collect data but actively drives progress. We’ll expand this resource to include three additional diseases and deepen our collaborations with researchers and clinicians. These partnerships will help unlock solutions that transform lives.
How We’ll Stay Focused
To achieve these goals, we’re guided by four strategic priorities:
1. Empowering Patients: Amplifying voices and fostering a sense of community and purpose.
2. Advancing Research: Supporting clinical trials and ensuring access to critical data.
3. Partnering for Change: Working with health agencies, industry leaders, and advocates to maximize impact.
4. Building for the Future: Growing our leadership team and focusing on health equity across the rare disease space.
Walking This Road Together
The road ahead won’t be without challenges, but we’re ready to meet them head-on. What remains constant is our dedication to the people we serve. At LRG, we believe no one should face a rare disease alone. Together, we’ll navigate this journey with hope, driven by purpose, and inspired by a vision for a healthier future.
