The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Newest Board Member Brings a Fresh Perspective to the LRG
Dr. Joseph Germino, retired medical oncologist who most recently served as the VP of Medical Affairs at Bayer, joins the LRG Board of Directors.
The LRG Strategic Plan
The Life Raft Group is expanding its impact, using data and collaboration to drive progress in GIST and rare diseases.
LRG Athletes Program
Announcing the new LRG Athletes Program - patients & caregivers use their passion for movement to build community & to support the LRG.
Patient of the Month – January 2025: Fruzsina Megyesi-Vizli
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Fruzsina Megyesi-Vizli shares her story.
The Global Advocate Academy Course (GAAC)
The New Horizons GIST Consortium has created a Global Advocate Academy Course (GAAC) targeted towards GIST patients, caretakers, oncologists, researchers, and organization representatives located worldwide.
Patient of the Month – December 2024: Alex Kozushin
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Alex Kozushin shares his story.
Importancia del diagnóstico molecular en el GIST
El diagnóstico molecular en GIST impulsa tratamientos personalizados y más eficaces, dando forma al futuro de la precisión en la medicina.
Impact of Molecular Diagnosis in GIST
Molecular diagnosis in GIST drives personalized, more effective treatments, shaping the future of precision medicine.
GLOBAL PARTNERS & AFFILIATIONS
