The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
Join the LRG’s Vision – Thriving Together in 2023
The Life Raft Group is thankful to those who so generously supported us in 2022 and we hope you continue to support our new initiatives in 2023. #thrivingtogether
Progress in Precision Medicine for GIST Patients
These new data were presented by Dr. Sebastian Bauer and Dr. Breelyn A. Wilky during the 2023 January ASCO Plenary Series from the INTRIGUE Efficacy Results of ctDNA Analysis for GIST Patients.
Caregiver of the Month – January 2023: Andrea Mantilla
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Andrea Mantilla shares her story. #thrivingtogether
European Patient Cancer Coalition Publishes Patient Guide for Cancer Biomarkers
European Patient Cancer Coalition published Patient Guide for Cancer Biomarkers in January 2023.
GIST Advocate & Board Member Dr. mOe Anderson Shares Her Vision About Her TEDTalk Opportunity
GIST Advocate & Board Member Dr. mOe Anderson shares how she set her intentions on a vision board to give a TEDTalk and this happened for her in January 2023. #thrivingtogether
#ThrivingTogether
Our theme for this year is Thriving Together and we are going to illustrate that concept throughout the year by sharing the celebrations, triumphs, and milestones that our community is experiencing while living with GIST.
AmazonSmile Ends Feb. 20 – Other Options to Consider
The AmazonSmile program is ending February 20th and we're asking you to consider signing up to be a G.E.M donor - even $10 a month makes a significant impact!
Medical Advisory Board Member Dr. Sameer Rastogi, AIIMS Team Publish Study on SDH-deficient GIST
Medical Advisory Board Member Dr. Sameer Rastogi and the AIIMS Team Publish Study on SDH-deficient GIST titled, "Succinate dehydrogenase deficient GIST: Case series and review of literature from a tertiary care centre in India".