Loading...

The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.

Real World Evidence In Action

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.

RECENT LRG DATA

0
Patients in LRG Registry
0%
of Patient Registry members know their mutation
0
Total # of Tissue
0%
of LRG members know their Risk of Recurrence

Update your GIST Patient Registry Information.

Join The Life Raft Group.

Available GIST clinical trials.

Search our database of GIST Specialists.

Dr. Monica Anderson

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.

HELP US SAVE LIVES

The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

It’s Time to Tell The Stories: Our Good News – Global Impact – Sarah

By |December 22nd, 2022|

Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Sarah McGoram shares her experience as a patient advocate.

  • for The Perfect Gift Post 12-21-22 newsletter

The Perfect Gift

By |December 21st, 2022|

Gift giving is a wonderful opportunity to share a different kind of gift, especially when considering loved ones who may be cancer patients and caregivers.

  • CTOS 2022 Collage

CTOS Sheds New Light on #GISTResearch

By |December 21st, 2022|

CTOS is an international group comprised of physicians and scientists with a primary interest in the tumors of connective tissues. The goal of the society is to advance the care of patients with connective tissue tumors.

Keep up with the latest news, events, and opportunities to help.

To contact The Life Raft Group, please call 973-837-9092

GLOBAL PARTNERS