The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
Executive Director Sara Rothschild Participates in Medscape CME on GIST
LRG Executive Director Sara Rothschild took part in a CME course produced by Medscape titled 'Improving Outcomes & Quality of Life in Advanced GIST: Discussing the Patient Journey and the Latest Data.'
LRG Medical Advisory Board Issues Statement on the Value of Telemedicine
The LRG Medical Advisory Board issued a statement in response to a NEJM article on telemedicine with the hope that other organizations & physicians will follow suit, advocating for treatment ease & equity.
The LRG Board of Directors Welcomes John Abrams to the Team
GIST Mentor John Abrams joins the Board of the LRG.
Deciphera Announces New Results from Analysis from Intrigue Study
Deciphera issued a press release today sharing the results of an exploratory analysis of data using circulating tumor DNA (ctDNA) from the INTRIGUE Phase 3 clinical study of ripretinib and announcing plans to initiate INSIGHT.
It’s Time to Tell The Stories: Our Good News – Global Impact – Sarah
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Sarah McGoram shares her experience as a patient advocate.
The Perfect Gift
Gift giving is a wonderful opportunity to share a different kind of gift, especially when considering loved ones who may be cancer patients and caregivers.
A Conversation with Dr. Jason Sicklick
In this interview with researcher & surgical oncologist Dr. Jason Sicklick shares about his passion for SDH-deficient GIST research.
CTOS Sheds New Light on #GISTResearch
CTOS is an international group comprised of physicians and scientists with a primary interest in the tumors of connective tissues. The goal of the society is to advance the care of patients with connective tissue tumors.