The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Cancer Cell Study from MDA Suggests New Approach
A recent study from MD Anderson Cancer Center provides insight into the ways that cancer cells metastasize. Scientists at The University of [...]
Ponatinib Found to Have Therapeutic Potential for Drug-Resistant KIT mutations in GIST
A recent article in the Clinical Cancer Research Journal discussed a new drug, Ponatinib, that shows therapeutic potential for drug-resistant KIT mutations in GIST.
Yoga May Help in Relieving Fatigue for Cancer Patients
A recent study funded by the National Center for Complementary and Alternative Medicine found that yoga may help breast cancer survivors [...]
Patient Advocates Gain Ground On Capitol Hill
Patient adPatient advocates have gained a new level of confidence thanks to the efforts of 21st Century Cures.
Recent Study Discusses Alternative Schedules for Sutent
A recent study published in Oncology Letters, discusses the importance of effective therapy management of sunitinib (Sutent)
Meditation Can Be a Powerful Tool for Relieving Anxiety for Cancer Patients
Meditation has been used for centuries to relax the body and calm the mind. For cancer patients, it can be a powerful tool to help alleviate the fears and anxieties that accompany a cancer diagnosis.
Books Can be Powerful Medicine
Books can be powerful allies in a cancer patient’s journey. Bibliotherapy is a recognized field in psychotherapy, where the printed word can [...]
Depression and Cancer : Shining a Light on an Under Recognized Problem
Although it may seem obvious to patients and caregivers in the cancer community, depression is often a problem that is left [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
