With the beautiful mountains of Switzerland and Lake Zurich in the background, 44 GIST Patient representatives from 28 countries and 32 patient groups/organizations convened in Zurich for the New Horizons GIST meeting from May 14-17, 2014.
In preparation for July 13th's GIST Awareness Day we have invited top advocates to share their best strategies on how to campaign for change and raise awareness about GIST.
GIST Day of Learning (GDOL), a free event, was held at the University of Miami on Saturday, March 23. Sponsored through the generous support of Bayer, Novartis and Genentech, this event is the second in a series of seminars focusing on the education and support of GIST patients and their families.
If you have been mailed a fundraising packet and still have donor cards to send out, it is not too late. Consider passing one on to a neighbor co-worker, friend or family member.
“It was such a frustrating time. It was awful,” Linda says, recalling how doctors had recommended she give Glaxo-SmithKline’s drug Votrient a shot but was unable to get Jessica’s insurance company to cover it despite appeals documented by GIST specialists.
