I recently traveled to Boston, Massachusetts to attend Partnering for Cures. This is a meeting sponsored by Faster Cures that brings together patient advocates, scientists, policy-makers, and other leading members in the industry who [...]
The Life Raft Group Patient Registry has over 15 years of self-reported and clinical data encompassing 35 years of patient history crossing institutional boundaries. The Patient Registry has 1703 patients from 67 countries, [...]
The heart is at the center of the cardiovascular system, the main function of which is to pump blood throughout the body, providing tissue and organs with the oxygen and nutrients they need. To [...]
After the diagnosis of GIST, a patient should take important steps to learn more about their particular disease so that they may find optimal care and treatment. This can be a very challenging and sometimes overwhelming task. Getting a copy of the surgical pathology report is one of those steps.
As one of the most common side-effects of Gleevec, Sutent and Stivarga, fatigue is a condition that many GIST survivors are intimately acquainted with. The National Comprehensive Cancer Network defines cancer-related fatigue as “a [...]