/The Life Raft Group Patient Registry in Review 2016

The Life Raft Group Patient Registry in Review 2016

By |2018-10-30T09:19:42-04:00February 24th, 2017|News, Newsletter, Patient Registry|

Tissue Bank

The Life Raft Group Patient Registry has over 15 years of self-reported and clinical data encompassing 35 years of patient history crossing institutional boundaries. The Patient Registry has 1703 patients from 67 countries, with the youngest patient diagnosed at 5 and the oldest at 92 and represents 12 different mutational types.

Click here to access the full report.

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