mgarland

About Mary Garland

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So far Mary Garland has created 124 blog entries.

Drug Repository Programs: A Creative Solution

Drug repository programs have the potential to be a key component in accessing life-saving treatments. In a landscape where prices for cancer drugs are escalating, many face a challenge in obtaining life-saving treatments. There are many resources for overcoming these obstacles, but it is clearly not enough for those already struggling with the challenges of a cancer diagnosis.

By |2020-03-04T09:14:56-05:00March 4th, 2020|Drug Treatment, News|

Partnership for Survival – Treating the Rarest of the Rare

Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.

By |2020-02-28T14:30:39-05:00February 27th, 2020|Advocacy, News, Research|

Priority Review Granted for Ripretinib

Deciphera Pharmaceuticals announced today that the U.S. Food and Drug Administration (FDA) has accepted their New Drug Application (NDA) for ripretinib for Priority Review. Ripretinib is an investigational broad-spectrum KIT and PDGFRa inhibitor for the treatment of patients with gastrointestinal stromal tumors (GIST).

By |2020-02-14T09:57:21-05:00February 14th, 2020|Drug Treatment, News|

NCI Mentions LRG as Component in Development of Ayvakit

In a new article from the NCI concerning the January 2020 approval of Ayvakit, (produced by Blueprint Medicines) the Life Raft Group is acknowledged in the section, “Capturing the Patient Experience.” We are proud to have played a role in supporting the research involved in bringing a new treatment to market for GIST patients.

By |2020-02-07T14:23:48-05:00February 7th, 2020|D842V, Drug Treatment, News, Patient Registry|

The Life Raft Group Research Model – LRG Science

PDF is available of LRG Science to print here. Real World Evidence in Action Although targeted medicine has brought about immense progress in cancer treatment, there are still enormous challenges [...]

By |2019-05-05T14:20:27-04:00February 21st, 2019|LRG Science, News, Newsletter, Research|

Coping for Caregivers – Preparing for a Hospital Stay

Caring for a loved one is filled with day-to-day stressors. But what about the stressors that are out of the ordinary? Any hospitalization is stressful. Preparing for the hospital to the extent possible can [...]

By |2019-01-08T10:38:35-05:00January 8th, 2019|Caregiver Support, Coping with GIST, News|
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