The Power of Advocacy
Patient Advocate Diane Albrecht details how she successfully appealed insurance denials for GIST monitoring with persistence and guidance from The Life Raft Group.
A Tour of Northern Texas
Executive Director Sara Rothschild toured Texas to connect with the GIST community and healthcare professionals, emphasizing patient advocacy.
Know Your Generic!
Learn how generic drugs differ from brand names and why GIST patients should monitor their side effects.
Make Strides Toward a Cure at the Cleveland Marathon!
Join The Life Raft Group at the 2025 Cleveland Marathon to raise awareness and funds for rare disease support, whether you run, walk, or cheer!
GIST On The Road: Jerry Calls Takes Off In May
Follow Jerry Call on his journey across the U.S. to reconnect, explore, and raise funds for The Life Raft Group.
Patient of the Month – March 2025: Rob Taylor
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Rob Taylor shares his story.
New Collaborative Study on Genomic Testing in SDH‐Deficienct GIST
The LRG and the Pediatric & SDH-Deficient GIST Consortium published a paper this February on Genomic Testing in SDH-deficient GIST.
Patient & Caregiver of the Month – February 2025: Becky & Rich Owens
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Becky & Rich Owens share their story.
John Poss Remembered through Memorial Fund
Every donation furthers GIST research, fuels clinical trials, and provides critical support for patients and caregivers navigating GIST.
LRG Staffer Plans a GIST Ride Across America
LRG Staffer Jerry Call embarks on a cross-country motorcycle trip to celebrate his 70th birthday & reconnect with the GIST community.