What does an Expanded Access Program mean for GIST patients?
Pharmaceutical companies may create an Expanded Access Program (sometimes called compassionate use) when a clinical trial is no longer enrolling but the medicine still shows promise.
Life Raft Research Award Recipients 2025
Our Summer Splash Match raised $60K which was awarded to three GIST researchers - Dr. Inga-Marie Schaefer, Dr. Matthew Hemming, and Dr. Jason Sicklick.
Patient Perspective on Testing – Survey Highlights
Survey highlights show that most GIST patients receive mutational testing, but awareness of ctDNA testing remains low despite strong interest.
Health Equity Council: Continuing the Legacy of a Beloved Member
The Life Raft Group’s Health Equity Council honors Martina’s legacy while working to close care gaps and expand patient access to resources.
Remembering Martina Will
Martina Will, a loving mother and dedicated advocate, battled GIST with strength and grace, leaving behind a lasting legacy of resilience, and devotion.
A Memorable Evening at Water of Life
The Water of Life whisky tasting event celebrated rare pours, community, and support for The Life Raft Group’s mission for GIST patients.
Understanding Genomic Testing and SDH-Deficiency in Gastrointestinal Stromal Tumors (GISTs)
Understand why genetic testing is crucial for identifying and managing SDH-deficient GISTs, a rare and often hereditary tumor that requires specialized care.
LRG Advocacy in Action
The Life Raft Group's advocacy during Rare Disease Week secured vital NIH funding for GIST and rare disease research.
GIST Summit 2025 & GIST Day of Learning & a Rodeo
Who knew that the weekend we planned to attend the GIST Summit and GIST Day of Learning in Houston would be the beginning of the annual Houston Livestock Show and Rodeo? Cowboy hats, boots [...]
GIST Summit 2025/GDOL Texas Presentations & Photo Gallery
GIST Summit 2025/GDOL Texas was held at MD Anderson Cancer Center and presentations and photo gallery are now available.