The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
The GIST Cancer Journal – First Journal Specifically focused on GIST
The GIST Cancer Journal is the first journal specifically focused on Gastrointestinal Stromal Tumors (GIST). Keep reading for more information.The GIST Cancer Journal [...]
Alianza GIST sets forth plan for strengthening the coalition in Latin America
Alianza GIST has set forth a plan to strengthen the coalition in Latin America. Keep reading for the official press release and more information about Alianza GIST.
Is it time to cure GIST?
Dr. Brian Rubin I’ve been working on a cure for GIST most of my professional life and the initial [...]
LRG at ASCO 2013
ASCO was held again this year in Chicago. Over 32,000 medical professionals and exhibitors participated in what has become an international event. [...]
ASCO features many updates on GIST trials
ASCO features many updates on GIST trials. Promising results for the immunotherapy approach to treating cancer dominated the annual conference of the ASCO [...]
An advocate’s rewarding experience at the NIH Clinic
NIH Clinic Participants From the moment I landed at the Washington Reagan Airport to the time I took off to [...]
What does cancer feel like?
I’ve been struggling to answer that question since I was diagnosed with a rare, malignancy known as gastrointestinal stromal tumor on February [...]
LRG researchers publish ‘cell sleep’ study
Members of the Life Raft Group Research Team continue to publish results of promising studies aimed at finding a cure for GIST. The latest reflects the collaboration that guides its efforts.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
