The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Viva Life Fest! Join us in Las Vegas
The Life Raft Group will be marking a milestone at Life Fest 2012: Celebrating 10 Years of Dedication on November 9 to [...]
Phase III Regorafenib trial meets primary endpoint
Bayer recently announced the results of its Phase III trial for regorafenib (BAY 73-4506), which is designed for patients with metastatic and/or unresectable GIST that have failed both imatinib and sunitinib.
I found a friend in the LRG
I was caught up in a whirlwind when I found out that I had cancer on a Monday morning in October of 2011. I was admitted to the hospital that same day in preparation to have emergency surgery the next morning to remove the tumors and then found out I had GIST - all in a 24 hour period! I felt like my world had turned upside down and shortly after that during my recovery, I was lucky enough to find Life Raft.
Ninth Swiss meeting covers uplifting topics
About 80 GIST patients, relatives, GIST experts, interested professionals, physicians and representatives of the pharmaceutical industry gathered at the Restaurant Au Premier at Zurich Main Station in Zurich on April 8 for the ninth meeting of the Swiss GIST group. A warm welcome was extended to special guests Candy Heberlein, President of the Swiss Foundation for the Promotion of Bone Marrow Transplantation, and Christel Jäger-Freysoldt, chief executive of Das Lebenshaus in Germany.
Spunky Texan fought GIST bravely
Betty Hayes Arnett went to be with our Lord and Savior Tuesday, Feb. 28, 2012 at age 64, after a long and courageous battle with cancer. She was born Aug. 23, 1947 to Ruel and Mattie Hayes in Corsicana, Calif. She was a beloved mother, grandmother and wife. She was a longtime member of Missionary Baptist Church of Corsicana.
Happy Cancerversary to Brenda Bannon!
Brenda Bannon of Berne, New York, calls her 10-year cancer-versary more of a marker or a stepping stone than a celebration. A stepping stone to a cure.
New report finds most hospital errors go unreported
In a January 6, 2012 New York Times article, “Report Finds Most Errors at Hospitals Go Unreported” by Robert Pear, the author explained that federal investigators have shown in a new report that hospital employees recognize and report only one out of seven errors...
First Harness a Cure a Huge Success
Twelve year GIST survivor and former harness driver, Bobby Kinsey, had two goals when he started planning “Harness a Cure” – to raise awareness about GIST and raise money to cure this disease. With over one hundred participants in the walk and donations continuing to arrive, Dover Down’s first Harness a Cure event to benefit the Life Raft Group’s research was a huge success thanks to Bobby who tells his fellow raftmates in the email community, “Keep Rowing.”
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
