The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Cross-continental fun at the LRG office!
There has been some cross-continental fun as of late at the LRG Office. Estelle Lecointe, French cancer advocacy poster girl, founder of Ensemble [...]
LRG in the News: Poster & Abstracts, oh my!
The LRG keeps popping up in the science community. Recently, the National Institutes of Health (NIH) as part of the Consortium for [...]
GIST Supporters ‘Show The Love’ for Texas Marathoner
GIST supporters showed their love for Texas marathoner Kate Poss. Keep reading for more on this inspirational story.
December 2009 clinical trials update
Here is a clinical trials update from December 2009 written by Jim Hughes United States RAD001 in combination with CP- 751,871 in patients [...]
REGISTER Study Open in Australia, New Zealand and South Korea
An interesting Phase 2 REGISTER study is ongoing and actively recruiting at 15 sites in Australia. Two sites in New Zealand and two sites in South Korea are also planned.
Cherished mother & farm girl passes away
Neva Hatten Hageman, passed away Wednesday (08/12/09) at The Ambassador in Nebraska City. She was born to George and Ruth (Kempf) Calkins, [...]
The patient’s dilemma: Where should I donate my GIST tissue?
The fact is GIST is a rare disease and as a result researchers simply do not have enough GIST tissue samples to [...]
Analysis of an observational registry of gastrointestinal stromal tumor (GIST) patients
This poster reported the latest data from the GIST ReGISTry, an online database of GIST patient statistics maintained by a group of American and Canadian GIST specialists and supported by Novartis Pharmaceuticals.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
