The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRGβs approach to GIST research through real world evidence, relies on timely, accurate data from the patientβs perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Our 20/20 Challenge Continues!
Join this Matching Gift Challenge for June 17th! A generous LRG donor has challenged The Life Raft Group with raising $3K by Friday, June 17th.
The Life Raft Group Patient Registry in Review 2021
The LRG plays an instrumental role in bridging the gap between patients with valuable clinical GISTories and researchers who are eager to understand the natural causes of GIST. To illustrate the progress of our data collection in the LRG GIST Patient Registry, we have released the GIST Patient Registry In Review for 2021.
Did You Know? Tissue Testing FREE for GIST Patients!
The Life Raft Group is currently conducting a tissue testing initiative for GIST patients to receive FREE Next-Generation Sequencing (NGS) Testing!
Efectos de la NutriciΓ³n y la Microbiota Intestinal en pacientes con GIST
TE INVITA A LA REUNIΓN DE PACIENTES PARA CONVERSAR SOBRE:"Efectos de la NutriciΓ³n y la Microbiota Intestinal en pacientes con GIST". La Sra. Carbajal-LΓ³pez describiΓ³ los beneficios de una nutriciΓ³n adecuada, la relaciΓ³n entre la nutriciΓ³n y los procedimientos quirΓΊrgicos, el vΓnculo entre el microbioma y el cΓ‘ncer, y el ejercicio. 07 junio.
Join The Life Raft Group 20/20 Challenge!
As part of our 2022 βItβs Time to Tell the Storiesβ theme and as the LRG celebrates 20 years as a non-profit, we are committed to raising $20,000 by Life Fest New Orleans (July 29-31st) with this 20-20 Challenge.
Patient of the Month for May: James
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. It's Time to Tell the Stories! James shares his story.
LRG Virtual Tumor Board Benefits Multiple Patients Globally
The first LRG Virtual Tumor Review Board for 2022 was held in April. There were four cases presented from all over the world, emphasizing the importance of virtual reviews.
GIST Day of Learning – GDOL Washington, DC 2022
The Life Raft Group held a virtual GIST Day of Learning (GDOL) in Washington, DC on April 27th, 2022. Top GIST specialists presented the latest on research and treatment options and provided a comprehensive review of the science behind GIST.
GLOBAL PARTNERS & AFFILIATIONS
