The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
¿Qué debo hacer si presento fátiga?
"¿Qué debo hacer si presento fátiga?" aportado por Fundación GIST México.
Annual Report 2020
Our theme for 2020 was Hope. 2020 presented a challenge to us all, but most especially to our patients and caregivers who are seeking to survive this rare cancer. In 2020, The Life Raft Group needed to provide a lifeline to our community, and to offer them hope in the form of increased support as we navigate the challenges of living in a COVID-19 world. #GISTHope
It’s Time: The Life Raft Group Biomarker Testing Campaign – Effective Treatment Access
It's time to shorten the time to effective treatment access. Fundación GIST Chile shares their story.
NIH Pediatric & Wildtype GIST Clinic 2021 Applications Are Open!
The LRG will be collaborating with the NIH again in 2021 to hold the Virtual GIST Tumor Board in place of the NIH's Pediatric & Wildtype GIST Clinic normally held in the DC area. Applications to have cases reviewed are now open.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Precise Diagnosis
It's time to to recognize the value of a more precise diagnosis. GISTer Jon Treder shares his story.
Welcome to our New LRG Board Members!
The Life Raft Group is delighted to welcome two phenomenal new members to our Board of Directors: Ms. Kay Stolzer and Dr. Monica (mOe) Anderson.
It’s Time: Precision Oncology
It's time to fully unleash the power of biomarker testing to support precision oncology - all GIST patients should have biomarker (mutational) testing for the best possible personalized treatment plan.
Caregiver of the Month for April: Vicenta Salinas
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Vicenta Salinas shares her story.
GLOBAL PARTNERS & AFFILIATIONS
